Changing the research landscape: the New York City Clinical Data Research Network
| Autor: | Harold Alan Pincus, Paul Meissner, Emme Levin Deland, Deborah D. Ascheim, Raffaella Hart, Arthur L. Caplan, Rainu Kaushal, George Hripcsak, Alexander F H Low, Charles Scaglione, Marc N. Gourevitch, Brian P. Currie, Parsa Mirhaji, Isaac Kastenbaum, Arthur Aaron Levin, Thomas R. Campion, Toby Bloom, Donna Shelley, Carol R. Horowitz, Thomas Check, Jonathan N. Tobin |
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| Rok vydání: | 2014 |
| Předmět: |
medicine.medical_specialty
Knowledge management Process (engineering) PCORnet Information Dissemination Health Informatics Computer Communication Networks Patient-Centered Care Outcome Assessment Health Care medicine Electronic Health Records Humans Data processing research network SIMPLE (military communications protocol) business.industry Management science electronic health record research data Focus on Building a Network for Patient-Centered Outcomes Research Information model Scalability New York City clinical data Collaborative governance Outcomes research business PCORI |
| Zdroj: | Journal of the American Medical Informatics Association : JAMIA |
| ISSN: | 1527-974X 1067-5027 |
| DOI: | 10.1136/amiajnl-2014-002764 |
| Popis: | The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learning healthcare systems. The NYC-CDRN includes a robust, collaborative governance and organizational infrastructure, which takes advantage of its participants’ experience, expertise, and history of collaboration. The technical design will employ an information model to document and manage the collection and transformation of clinical data, local institutional staging areas to transform and validate data, a centralized data processing facility to aggregate and share data, and use of common standards and tools. We strive to ensure that our project is patient-centered; nurtures collaboration among all stakeholders; develops scalable solutions facilitating growth and connections; chooses simple, elegant solutions wherever possible; and explores ways to streamline the administrative and regulatory approval process across sites. |
| Databáze: | OpenAIRE |
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