Keto-on-the-Clock: A Survey of Dietetic Care Contact Time Taken to Provide Ketogenic Diets for Drug-Resistant Epilepsy in the UK
| Autor: | Rachel Meskell, Kirsty J Martin-McGill, Victoria J. Whiteley, Natasha E. Schoeler, Kathryn Lightfoot, Bridget Lambert |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
0301 basic medicine
Adult patient contact Pediatrics medicine.medical_specialty Drug Resistant Epilepsy Time Factors Adolescent Contact time Dietetics ketogenic diets Enteral administration Article Blended food 03 medical and health sciences Eating Young Adult 0302 clinical medicine Enteral Nutrition drug-resistant epilepsy Surveys and Questionnaires Medicine Humans TX341-641 Nutritionists Child time dietitian 030109 nutrition & dietetics Nutrition and Dietetics business.industry Nutrition. Foods and food supply Patient contact Treatment options Infant United Kingdom Caregivers dietetic management Child Preschool Per patient per month business Diet Ketogenic Delivery of Health Care Ireland 030217 neurology & neurosurgery Food Science |
| Zdroj: | Nutrients Volume 13 Issue 8 Nutrients, Vol 13, Iss 2484, p 2484 (2021) |
| ISSN: | 2072-6643 |
| DOI: | 10.3390/nu13082484 |
| Popis: | Medical ketogenic diets (KDs) are effective yet resource-intensive treatment options for drug-resistant epilepsy (DRE). We investigated dietetic care contact time, as no recent data exist. An online survey was circulated to ketogenic dietitians in the UK and Ireland. Data were collected considering feeding route, KD variant and type of ketogenic enteral feed (KEF), and the estimated number of hours spent on patient-related activities during the patient journey. Fifteen dietitians representing nine KD centres responded. Of 335 patients, 267 (80%) were 18 years old or under. Dietitians spent a median of 162 h (IQR 54) of care contact time per patient of which a median of 48% (IQR 6) was direct contact. Most time was required for the classical KD taken orally (median 193 h IQR 213) as a combined tube and oral intake (median 211 h IQR 172) or a blended food KEF (median 189 h IQR 148). Care contact time per month was higher for all KDs during the three-month initial trial compared to the two-year follow-up stage. Patients and caregivers with characteristics such as learning or language difficulties were identified as taking longer. Twelve out of fifteen (80%) respondents managed patients following the KD for more than two years, requiring an estimated median contact care time of 2 h (IQR 2) per patient per month. Ten out of fifteen (67%) reported insufficient official hours for dietetic activities. Our small survey gives insight into estimated dietetic care contact time, with potential application for KD provision and service delivery |
| Databáze: | OpenAIRE |
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