Determinants of quality of life in children with colorectal diseases
| Autor: | Peter C. Minneci, Victoria A. Lane, Katherine J. Deans, Kristine M. Nacion, Jennifer N. Cooper, Marc A. Levitt |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Male
Pediatrics medicine.medical_specialty Abdominal pain Adolescent Nausea Health Status Urinary system Disease 03 medical and health sciences 0302 clinical medicine Quality of life Surveys and Questionnaires 030225 pediatrics medicine Humans Hirschsprung Disease Child Defecation business.industry Infant Newborn Infant General Medicine Abdominal distension medicine.disease Comorbidity Anorectal Malformations humanities Child Preschool 030220 oncology & carcinogenesis Pediatrics Perinatology and Child Health Quality of Life Vomiting Female Surgery medicine.symptom business |
| Zdroj: | Journal of Pediatric Surgery. 51:1843-1850 |
| ISSN: | 0022-3468 |
| Popis: | Background Health related Quality of Life (HRQoL) is an important outcome in medical care. The aim of our study was to identify characteristics associated with lower HRQoL scores in children with anorectal malformation (ARM) and Hirschsprung disease (HD). Methods Patients younger than 18years, with HD or ARM, who were evaluated at our center from April 2014 to August 2015, were identified. The results of comprehensive questionnaires regarding diagnosis, symptoms, comorbidities and previous medical/surgical history, and validated tools to assess urinary status, stooling status and HRQoL were evaluated. Results In children aged 0–4years, vomiting and abdominal distension were found to be associated with a significant reduction in total HRQoL scores. In children >4years of age, vomiting, nausea, abdominal distension, and abdominal pain were also associated with a significantly lower HRQoL. The strongest predictor of lower HRQoL scores on regression tree analysis, in all age groups, was the presence of a psychological, behavioral or developmental comorbidity. Conclusion Patients with either HD or an ARM who have a psychological, behavioral or developmental problem experience significantly lower HRQoL than children without such problems, suggesting that provision of behavioral/developmental support as part of the multidisciplinary care of these children may have a substantial impact on their HRQoL. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|
Full Text from ScienceDirect