Additional file 1: of Analysis of the caregiver burden associated with Sanfilippo syndrome type B: panel recommendations based on qualitative and quantitative data

Autor:	Shapiro, Elsa, LourençO, Charles, Mungan, Neslihan, Muschol, Nicole, O’Neill, Cara, Vijayaraghavan, Suresh
Rok vydání:	2019
DOI:	10.6084/m9.figshare.8840120.v1
Popis:	Mucopolysaccharidosis IIIB Research Discussion Guide. Complete questionnaire used for the secondary background research that the clinical advisors used to inform their discussion and recommendations. (PDF 447 kb)
Databáze:	OpenAIRE
Externí odkaz:	https://explore.openaire.eu/search/publication?articleId=doi_dedup___::623a2304ec340f7379d142c4886398e1 Zobrazit plný text záznamu