Caregiver burden among informal caregivers in the largest specialized palliative care unit in Malaysia: a cross sectional study
| Autor: | Farnaza Ariffin, Cindy Teoh Cy Oun, Diana Katiman, Zati Sabrina Ahmad Zubaidi |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Male medicine.medical_specialty Palliative care Cross-sectional study lcsh:Special situations and conditions Population Caregiver Burden Burden Logistic regression Unit (housing) 03 medical and health sciences 0302 clinical medicine Surveys and Questionnaires Adaptation Psychological Patients' Rooms medicine Humans 030212 general & internal medicine education Depression (differential diagnoses) Aged Palliative education.field_of_study business.industry lcsh:RC952-1245 Palliative Care Malaysia General Medicine Caregiver burden Middle Aged Caregiver Cross-Sectional Studies 030220 oncology & carcinogenesis Family medicine Anxiety Female Patient Care medicine.symptom business Research Article |
| Zdroj: | BMC Palliative Care BMC Palliative Care, Vol 19, Iss 1, Pp 1-15 (2020) |
| ISSN: | 1472-684X |
| DOI: | 10.1186/s12904-020-00691-1 |
| Popis: | Background Informal caregivers (IC) are often overshadowed by the attention required by the terminally ill. This study aims to reveal the estimated proportion of caregiver burden, psychological manifestations and factors associated with caregiver burden among IC in the largest specialized Palliative Care Unit (PCU) in Malaysia. Methods This was a cross-sectional study involving IC attending a PCU. Caregiver burden and psychological manifestations were measured using previously translated and validated Zarit Burden Interview and DASS-21 questionnaires respectively. Two hundred forty-nine samples were selected for analysis. Result The mean ZBI score was 23.33 ± 13.7. About half of the population 118(47.4%) was found to experienced caregiver burden whereby majority have mild to moderate burden 90(36.1%). The most common psychological manifestation among IC is anxiety 74(29.7%) followed by depression 51(20.4%) and stress 46(18.5%). Multiple logistic regression demonstrated that women who are IC to patients with non-malignancy were less likely to experience caregiver burden. IC who were highly educated and spent more than 14 h per day caregiving were at least twice likely to experience caregiver burden. Finally, those with symptoms of depression and anxiety were three times more likely to suffer from caregiver burden. Conclusion Caregiver burden among IC to palliative patients is prevalent in this population. IC who are men, educated, caregiving for patients with malignancy, long hours of caregiving and have symptoms of depression and anxiety are at risk of developing caregiver burden. Targeted screening should be implemented and IC well-being should be given more emphasis in local policies. |
| Databáze: | OpenAIRE |
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