Financial constraints on genetic counseling and further risk‐management decisions among U.S. women at elevated breast cancer risk
| Autor: | Tasleem J. Padamsee, Rachel J Meadows |
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| Rok vydání: | 2021 |
| Předmět: |
Risk
Genetic counseling media_common.quotation_subject Decision Making Breast Neoplasms Genetic Counseling Affect (psychology) Breast cancer Debt medicine Humans Genetic Testing Genetic discrimination Child Constraint (mathematics) Genetics (clinical) Risk management Genetic testing media_common Finance Risk Management medicine.diagnostic_test business.industry medicine.disease Female business Psychology |
| Zdroj: | Journal of Genetic Counseling. 30:1452-1467 |
| ISSN: | 1573-3599 1059-7700 |
| Popis: | Clinical guidelines recommend that women at high risk of breast cancer should consider various risk-management options, which remain widely underutilized. We conducted semi-structured, qualitative interviews with 50 high-risk women to understand how financial constraints affect use of genetic counseling, genetic testing, and further risk-management decisions. Inductive analyses revealed three categories of health-related financial constraint: (a) lack of insurance, (b) underinsurance, and (c) other financial constraints (e.g., medical debt, raising children, managing comorbidities). Various breast cancer risk-management actions were limited by these financial constraints, including genetic counseling, genetic testing, enhanced screening, and prophylactic surgeries. Women's narratives also identified complex relationships between financial constraint and perceptions of healthcare providers and insurance companies, particularly as related to bias, price transparency, and potential genetic discrimination. Results from this study have implications for further research and expansion of genetic counseling services delivery to more economically and racially diverse women. |
| Databáze: | OpenAIRE |
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