Practical Needs in the Home Care of Latino Children With Medical Complexity
| Autor: | Savithri Nageswaran, Mark S. Beveridge, Aura I. Rosado, Emily Ware |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Male
Child Health Services MEDLINE Tertiary care 03 medical and health sciences 0302 clinical medicine Nursing 030225 pediatrics Health care North Carolina Humans Duration (project management) Child Qualitative Research Health Services Needs and Demand business.industry 05 social sciences Infant Newborn 050301 education Infant General Medicine Hispanic or Latino Home Care Services Disabled Children Food insecurity Food Insecurity Socioeconomic Factors Child Preschool Housing Female Thematic analysis Basic needs business Psychology 0503 education Qualitative research |
| Zdroj: | Home healthcare now. 38(4) |
| ISSN: | 2374-4537 |
| Popis: | Latino children face barriers to high-quality healthcare. Because children with medical complexity (CMC) have higher healthcare needs, Latino CMC are likely to experience greater effects of these barriers. These vulnerabilities are exacerbated when Latino CMC endure adverse social conditions, such as food insecurity and housing instability. The study objective was to describe the challenges faced by caregivers of Latino CMC in meeting the practical needs of their children when caring for them at home. In this qualitative study, 70 Latino CMC enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 45 months. We collected care coordination notes from encounter logs and interviewed bilingual care coordinators regarding their experiences with each child. Using thematic content analysis and an iterative process, we identified recurrent themes related to practical needs. Four themes emerged. Caregivers: 1) faced financial challenges due to many reasons that were exacerbated by children's medical conditions; 2) had challenges meeting basic needs of their families, including food and shelter; 3) experienced difficulties obtaining necessary medical supplies for their children; and 4) relied on care coordinators to navigate the system. We conclude that Latino caregivers of CMC experience many challenges meeting their families' basic needs and obtaining necessary medical supplies to care for their CMC at home. Care coordinators play a major role in addressing the practical needs of Latino CMC. Future studies should determine whether addressing the practical needs of Latino CMC would improve their health outcomes. |
| Databáze: | OpenAIRE |
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