Assessing Patient Organization Participation in Health Policy: A Comparative Study in France and Italy
| Autor: | Stanimir Hasurdjiev, Kyriakos Souliotis, Francois Sarkozy, Dominique Debiais, Oreste Claudio Buonomo, Chara Tzavara, Eirini Agapidaki, Dimitrios Varvaras, Lily Evangelia Peppou |
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| Rok vydání: | 2016 |
| Předmět: |
Adult
Male Health Policy Decision-Making Health (social science) Psychometrics Leadership and Management Decision Making Management Monitoring Policy and Law 03 medical and health sciences 0302 clinical medicine Health Information Management Cronbach's alpha Internal consistency Neoplasms Surveys and Questionnaires Humans 030212 general & internal medicine Patient participation Health policy Aged Organizations business.industry lcsh:Public aspects of medicine 030503 health policy & services Health Policy Construct validity Reproducibility of Results lcsh:RA1-1270 Public relations Middle Aged Patient organization Settore MED/18 - Chirurgia Generale Italy Scale Development International policy Democracy Index Female Original Article Cancer Patient Organizations (CPOs) France Patient Participation 0305 other medical science Psychology business |
| Zdroj: | International Journal of Health Policy and Management International Journal of Health Policy and Management, Vol 7, Iss 1, Pp 48-58 (2018) |
| ISSN: | 2322-5939 |
| Popis: | Background Even though there are many patient organizations across Europe, their role in impacting health policy decisions and reforms has not been well documented. In line with this, the present study endeavours to fill this gap in the international literature. To this end, it aims to validate further a previously developed instrument (the Health Democracy Index - HDI) measuring patient organization participation in health policy decision-making. In addition, by utilizing this tool, it aims to provide a snapshot of the degree and impact of cancer patient organization (CPO) participation in Italy and France. Methods A convenient sample of 188 members of CPOs participated in the study (95 respondents from 10 CPOs in Italy and 93 from 12 CPOs in France). Participants completed online a self-reported questionnaire, encompassing the 9-item index and questions enquiring about the type and impact of participation in various facets of health policy decisionmaking. The psychometric properties of the scale were explored by performing factor analysis (construct validity) and by computing Cronbach α (internal consistency). Results Findings indicate that the index has good internal consistency and the construct it taps is unidimensional. The degree and impact of CPO participation in health policy decision-making were found to be low in both countries; however in Italy they were comparatively lower than in France. Conclusion In conclusion, the HDI can be effectively used in international policy and research contexts. CPOs participation is low in Italy and France and concerted efforts should be made on upgrading their role in health policy decision-making. |
| Databáze: | OpenAIRE |
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