Advance Care Planning in Neurodegenerative Disorders: A Scoping Review
| Autor: | Andrea Giordano, Ludovica De Panfilis, Marta Perin, Laura Servidio, Marta Cascioli, Maria Grazia Grasso, Alessandra Lugaresi, Eugenio Pucci, Simone Veronese, Alessandra Solari |
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| Přispěvatelé: | Giordano A., De Panfilis L., Perin M., Servidio L., Cascioli M., Grasso M.G., Lugaresi A., Pucci E., Veronese S., Solari A. |
| Rok vydání: | 2021 |
| Předmět: |
nervous system diseases
palliative care Health Toxicology and Mutagenesis Health Personnel shared decision making Public Health Environmental and Occupational Health review literature Neurodegenerative Diseases Neurodegenerative disorder Review ethics Advance Care Planning Caregivers neurodegenerative disorders Medicine Humans end of life care Ethic Nervous system disease dementia |
| Zdroj: | International Journal of Environmental Research and Public Health International Journal of Environmental Research and Public Health, Vol 19, Iss 803, p 803 (2022) |
| ISSN: | 1660-4601 |
| Popis: | Advance care planning (ACP) is increasingly acknowledged as a key step to enable patients to define their goals/preferences for future medical care, together with their carers and health professionals. We aimed to map the evidence on ACP in neurodegenerative disorders. We conducted a scoping review by searching PubMed (inception-December 28, 2020) in addition to trial, review, and dissertation registers. From 9367 records, we included 53 studies, mostly conducted in Europe (45%) and US-Canada (41%), within the last five years. Twenty-six percent of studies were qualitative, followed by observational (21%), reviews (19%), randomized controlled trials (RCTs, 19%), quasi-experimental (11%), and mixed-methods (4%). Two-thirds of studies addressed dementia, followed by amyotrophic lateral sclerosis (13%), and brain tumors (9%). The RCT interventions (all in dementia) consisted of educational programs, facilitated discussions, or videos for patients and/or carers. In conclusion, more research is needed to investigate barriers and facilitators of ACP uptake, as well as to develop/test interventions in almost all the neurodegenerative disorders. A common set of outcome measures targeting each discrete ACP behavior, and validated across the different diseases and cultures is also needed. |
| Databáze: | OpenAIRE |
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