Participation in thrill-seeking activities by patients with hypertrophic cardiomyopathy: Individual preferences, adverse events and physician attitude
| Autor: | Benjamin J. Vaccaro, Cynthia Burstein Waldman, Jodie Ingles, Niccolò Maurizi, Lisa Salberg, Daniel Jacoby, Christopher Semsarian, Iacopo Olivotto, Stephen B. Heitner, Nikolaos Papoutsidakis, Meghan Mannello |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male medicine.medical_specialty Attitude of Health Personnel Nausea 030204 cardiovascular system & hematology Chest pain Risk Assessment Sudden cardiac death 03 medical and health sciences Risk-Taking 0302 clinical medicine Physicians Surveys and Questionnaires Palpitations medicine Humans 030212 general & internal medicine Risk factor Adverse effect Aged hypertrophic cardiomyopathy thrill-seeking activities arrhythmias sudden cardiac death business.industry Hypertrophic cardiomyopathy Patient Preference Cardiomyopathy Hypertrophic Middle Aged medicine.disease Defibrillators Implantable Cohort Physical therapy Female medicine.symptom Cardiology and Cardiovascular Medicine business Decision Making Shared |
| Zdroj: | American Heart Journal. 214:28-35 |
| ISSN: | 0002-8703 |
| Popis: | Background Thrill-seeking activities are a favorite pastime for people of all ages. Patients with hypertrophic cardiomyopathy (HCM) are often barred from participation on the basis of danger for arrhythmias. Our aim was to collect information regarding the safety of thrill-seeking activities for HCM patients. Methods An anonymous online survey invited adult HCM patients to report participation in 11 activities (rollercoaster riding, jet skiing, rafting, bungee jumping, rappelling, paragliding, kayaking/canoeing, motor racing, snowboarding, BASE jumping and skydiving) before and after HCM diagnosis, along with major (ICD shock, syncope) or minor (nausea, dizziness, palpitations, chest pain) adverse events related to participation, and relevant physician advice. Results Six hundred forty-seven HCM patients completed the survey, with 571 (88.2%) reporting participation in ≥1 TSAs (participant age 50.85 ± 14.21, 56.6% female, 8143 post-diagnosis participations). At time of survey, 457 participants (70.6%) were ICD-carriers or had ≥1 risk factor for sudden cardiac death. Nine (1.5%) participants reported a major event during or immediately after (60 minutes) of surveyed activity. Minor adverse events were reported by 181 participants (31.6%). In addition, 8 participants reported a major adverse event >60 minutes later but within the same day. Regarding physician advice, of the 213 responders (32.9%) receiving specific advice, 56 (26.2%) were told safety data is absent with no definitive recommendation, while 24 (11.2%) and 93 (43.6%) were told TSAs were respectively safe or dangerous. Conclusions In this cohort, participation in thrill-seeking activities rarely caused major adverse events. This information can be used for shared-decision making between providers and patients. |
| Databáze: | OpenAIRE |
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