Living with severe COPD. A qualitative exploration of the experience of patients in Leeds
Autor: | S.J. Guthrie, M. F. Muers, Kate Hill |
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Rok vydání: | 2001 |
Předmět: |
Male
Pulmonary and Respiratory Medicine medicine.medical_specialty Palliative care Activities of daily living Health Status Severity of Illness Index chronic obstructive pulmonary disease law.invention Interviews as Topic Social support Quality of life Randomized controlled trial law Activities of Daily Living Severity of illness medicine Humans Family Interpersonal Relations Lung Diseases Obstructive Aged Aged 80 and over COPD palliative care business.industry Social Support Middle Aged medicine.disease Clinical trial Social Isolation quality of life Housing Physical therapy Female qualitative methodology business |
Zdroj: | Respiratory Medicine. 95:196-204 |
ISSN: | 0954-6111 |
DOI: | 10.1053/rmed.2000.1021 |
Popis: | A sample of 37 patients with severe chronic obstructive pulmonary disease (COPD) drawn from a larger group of 64 patients being studied in a randomized trial of nebulizer versus high-dose inhaler therapy, and similar in age and gender mix, was interviewed in depth, with a view to illuminating standardized outcome measures and improving the understanding of these patients' needs. Three patients are described in detail. The interview material was analysed using non-computerized methods. Quality of life was seen as depending mainly on family relationships, opportunities afforded locally for neighbourliness and freedom from fear, mobility and independence in the activities of daily living, and the absence or successful mitigation of symptoms of concomitant disease. Disease-specific, symptom-oriented outcome measures may miss these. Additionally, the near and repeatedly threatening approach of death recommended extension of a palliative approach to endstage COPD. |
Databáze: | OpenAIRE |
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