Patients’ Families’ Perceptions of Lupus in Sub-Saharan Africa
Autor: | M. Ouédraogo, J. B. Boguikouma, J. Iba Ba, A. Abo Ekomie, Y.S. Oliveira, I. Nseng Nseng |
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Rok vydání: | 2017 |
Předmět: |
Adult
Male Health Knowledge Attitudes Practice medicine.medical_specialty Adolescent Heart disease Biological polymorphism Population Disease Young Adult Surveys and Questionnaires Internal medicine Humans Lupus Erythematosus Systemic Medicine Family Prospective Studies education Africa South of the Sahara Autoimmune disease education.field_of_study Pregnancy Systemic lupus erythematosus business.industry Public Health Environmental and Occupational Health Hydroxychloroquine Middle Aged medicine.disease Infectious Diseases Patient Compliance Female business medicine.drug |
Zdroj: | Médecine et Santé Tropicales. 27:407-410 |
ISSN: | 2261-2211 2261-3684 |
Popis: | Lupus is an autoimmune disease affecting the connective tissue. Its clinical and biological polymorphism is often misunderstood by patients and families and can lead to treatment interruption and a decision to turn to alternative medicine. We used a questionnaire to assess the degree of knowledge of this disease of family members living with lupus patients. Of the 56 lupus patients receiving regular follow-up at our hospital, 123 members of 30 of their families (53.5%) participated. Overall, among these families, 81.5% of the participants perceived the disease as predominantly non-mystical, 72.3% as hereditary, 87.9% as non-contagious, and 60.9% as curable ; 90.2% considered it compatible with pregnancy, another 90.2% with work, and 73.9% with sports activity. The principal clinical signs mentioned involved joint (22.7%), skin (13%), and finger-related (11.3%) disorders, with renal disease (9.7%), heart disease (8.1%), and general signs (8.1%) mentioned most frequently as the main complications. The best-known medications for disease control were corticosteroids (20.3%) and hydroxychloroquine (17%). Family members considered non-adherence (53.6%) the most frequent factor in disease flares. More than half were unaware of the life expectancy associated with this disease, but 30.1 % thought it was lower than that of the national population of Gabon - 70 years. Only 64 (52%) of the respondents had seen documentation about lupus, mostly through the Internet (65.6%). Lupus is not a disease that families know and understand well. |
Databáze: | OpenAIRE |
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