Optimizing Survivorship Care Services for Asian Adolescent and Young Adult Cancer Survivors: A Qualitative Study

Autor: Patricia Soek Hui Neo, Eileen Poon, Chia Jie Tan, Tabitha Ng, Wei Lin Goh, B. Srilatha, Alexandre Chan, Mohamad Farid, Yu Ke, Isabel Mei Jun Tan
Rok vydání: 2020
Předmět:
Male
8.1 Organisation and delivery of services
Survivorship
0302 clinical medicine
7.1 Individual care needs
Cancer Survivors
Health care
Medicine
service
030212 general & internal medicine
Qualitative Research
Cancer
Pediatric
Service design
Rehabilitation
Health Services
Focus Groups
humanities
Asians
Outreach
Oncology
030220 oncology & carcinogenesis
Public Health and Health Services
Female
Thematic analysis
Health and social care services research
Asian Continental Ancestry Group
Adult
Adolescent
Pediatric Cancer
Oncology and Carcinogenesis
Nursing
03 medical and health sciences
Young Adult
Asian People
Clinical Research
Survivorship curve
Humans
Service (business)
business.industry
Prevention
Focus group
supportive care
Good Health and Well Being
Pediatrics
Perinatology and Child Health
health care professionals
Management of diseases and conditions
business
Qualitative research
Zdroj: Journal of adolescent and young adult oncology, vol 9, iss 3
ISSN: 2156-535X
Popis: Purpose: With an increasing focus on developing survivorship services tailored for adolescent and young adult (AYA) cancer survivors, incorporation of viewpoints from both survivors and health care professionals (HCPs) is important. This study aims to explore the perceptions of current and prospective survivorship services from both groups in Singapore to propose service design and delivery strategies. Methods: Focus group discussions with 23 AYA cancer survivors between the ages of 16 and 39 years at diagnosis and 18 HCPs were conducted in National Cancer Centre Singapore (NCCS) and Singapore Cancer Society (SCS). All focus group discussions were transcribed verbatim. Deductive thematic analysis was performed according to the components of a design thinking model: empathizing with AYA survivors, defining care gaps, proposing services, and implementation strategies. Results: AYA survivors preferred age-specific services that are aligned with their personal goals. Current survivorship care failed to address the needs of survivors' dependents (caregivers and children) and to consider the utility of each service temporally. Prospective services should clarify disease disclosure obligation in job search and introduce a care navigator. Key implementation strategies included (1) training HCPs on communication techniques with AYA, (2) selecting engagement platforms that complement survivors' information-seeking behavior, (3) improving outreach to survivors through appropriate branding and publicity, and (4) consolidating services from multiple providers. Conclusions: The design of survivorship care services for AYA survivors should be systematic in its conceptualization process and employ implementation strategies. The coordination of the wide spectrum of services warrants a concerted effort by cancer centers, community partners, and the government.
Databáze: OpenAIRE
Externí odkaz: