The impact of COVID-19 on rare and complex connective tissue diseases: the experience of ERN ReCONNET
| Autor: | Marteen Limper, Matthias Schneider, Alberto Sulli, Luc Mouthon, Fransiska Malfait, Ulf Müller-Ladner, Jürgen Grunert, Lorenzo Cavagna, Ilaria Galetti, Vanessa Smith, Ana Rita Vieira, Stefano Bombardieri, Marco Matucci-Cerinic, Ana Margarida Antunes, Alessandro Ferraris, Tobias Alexander, Giuseppe Turchetti, Marta Mosca, Laurent Arnaud, Tadej Avcin, Jeska K de Vries-Bouwstra, Thomas Krieg, P. Martin van Hagen, Alain Meyer, Eric Hachulla, Angela Tincani, Silvia Aguilera, Simona Rednic, Sara Cannizzo, Benjamin Chaigne, Thierry Martin, Alain Cornet, Rebecca Fischer-Betz, Xavier Mariette, Luca Iaccarino, Lorenzo Beretta, Diana Marinello, Rosaria Talarico, Vera Guimarães, Nathalie Costedoat-Chalumeau, João Eurico Fonseca, Lisa Matthews, Farah Tamirou, Carlomaurizio Montecucco, Andrea Doria, Vasco C. Romão, Frédéric Houssiau, Jacob M van Laar, Simone Ticciati, Maurizio Cutolo, Anna Viola Taulaigo, Gerd R Burmester, Enrique Terol, Zahir Amoura, Andrea Gaglioti, Charissa Frank, Domenica Taruscio |
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| Přispěvatelé: | Repositório da Universidade de Lisboa, UCL - SSS/IREC/RUMA - Pôle de Pathologies rhumatismales, UCL - (SLuc) Service de rhumatologie, Immunology, Internal Medicine |
| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
Telemedicine Vulnerability Telehealth Comorbidity 03 medical and health sciences Patient safety 0302 clinical medicine Systemic lupus erythematosus Rheumatology Antiphospholipid syndrome Medicine Humans Connective Tissue Diseases Pandemics 030203 arthritis & rheumatology Health economics business.industry SARS-CoV-2 COVID-19 medicine.disease Connective tissue disease 030104 developmental biology Sjögren's disease Perspective Systemic sclerosis Medical emergency business Health impact assessment Delivery of Health Care Rare disease |
| Zdroj: | BASE-Bielefeld Academic Search Engine Nature Reviews. Rheumatology Nature Reviews Rheumatology Nature reviews. Rheumatology, Vol. 17, no.3, p. 177-184 (2021) Nature reviews rheumatology, 17(3), 177-184. Nature Publishing Group Repositório Científico de Acesso Aberto de Portugal Repositório Científico de Acesso Aberto de Portugal (RCAAP) instacron:RCAAP |
| ISSN: | 1759-4804 1759-4790 |
| Popis: | During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies. In this Perspective article, members of the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases discuss clinical and organizational challenges in this community caused by the COVID-19 pandemic and what lessons might be learned for the future. |
| Databáze: | OpenAIRE |
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