Impact of pediatric epilepsy: Voices from a focus group and implications for public policy change
| Autor: | Anbesaw W. Selassie, Gigi Smith, Pat L. Sample, Elisabeth Pickelsimer, Janelle L. Wagner, Pamela L. Ferguson |
|---|---|
| Rok vydání: | 2009 |
| Předmět: |
Adult
Male Parents medicine.medical_specialty Public policy Public Policy Risk Assessment Peer Group Education Developmental psychology Behavioral Neuroscience Epilepsy Qualitative analysis Seizures medicine Humans Child Psychiatry Pediatric epilepsy Insurance Health Schools business.industry Focus Groups medicine.disease Focus group Increased risk Caregivers Neurology Data Interpretation Statistical Female Neurology (clinical) business Psychosocial Qualitative research |
| Zdroj: | Epilepsy & Behavior. 16:161-165 |
| ISSN: | 1525-5050 |
| DOI: | 10.1016/j.yebeh.2009.07.008 |
| Popis: | Epilepsy affects approximately 0.5–1% of youth, and challenges for them and their families reach far beyond seizures. Quantitative studies have shown that in addition to increased risk for psychosocial difficulties, many experience stigma and barriers to services and resources. As a complement to quantitative analyses, qualitative research further provides unique insight into understanding the impact of epilepsy on youth and families. In the present study, focus groups were held to discuss families’ experiences with epilepsy and access to related services. Qualitative analysis revealed three themes highlighting medical, educational, and social challenges of youth with epilepsy. Implications include recommendations for improvements in public awareness and public policy change. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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