Women’s Experience with Non-Invasive Prenatal Testing and Emotional Well-being and Satisfaction after Test-Results

Autor: Schendel, R.V. van, Page-Christiaens, G.C.M.L., Beulen, L., Bilardo, C.M., Boer, M.A. de, Coumans, A.B.C., Faas, B.H.W., Langen, I.M. van, Lichtenbelt, K.D., Maarle, M.C. van, Macville, M.V.E., Oepkes, D., Pajkrt, E., Henneman, L., Dutch NIPT Consortium
Přispěvatelé: Human genetics, Obstetrics and gynaecology, APH - Quality of Care, APH - Personalized Medicine, Amsterdam Reproduction & Development (AR&D), Other departments, Human Genetics, ARD - Amsterdam Reproduction and Development, Obstetrics and Gynaecology, Reproductive Origins of Adult Health and Disease (ROAHD), Health Psychology Research (HPR), MUMC+: MA Medische Staf Obstetrie Gynaecologie (9), RS: GROW - R4 - Reproductive and Perinatal Medicine, Obstetrie & Gynaecologie, MUMC+: DA KG Lab Centraal Lab (9)
Rok vydání: 2017
Předmět:
DUTCH LABORATORIES
Satisfaction
Personal Satisfaction
Anxiety
0302 clinical medicine
Pregnancy
Prenatal Diagnosis
Surveys and Questionnaires
Medicine
Genetics(clinical)
030212 general & internal medicine
Genetics (clinical)
Original Research
Reassurance
media_common
030219 obstetrics & reproductive medicine
Obstetrics
3. Good health
Emotional well-being
Reconstructive and regenerative medicine Radboud Institute for Molecular Life Sciences [Radboudumc 10]
Feeling
Female
TRIAL
Prenatal Screening
medicine.symptom
MATERNAL ANXIETY
PREGNANT-WOMEN
Adult
medicine.medical_specialty
Genetic counseling
media_common.quotation_subject
Health literacy
03 medical and health sciences
AGE
Humans
Medical history
ATTITUDES
Gynecology
ANEUPLOIDY
business.industry
Public health
Other Research Radboud Institute for Health Sciences [Radboudumc 0]
Patient Acceptance of Health Care
medicine.disease
Health Literacy
Pregnancy Trimester
First
PERSPECTIVES
Down Syndrome
business
Trisomy
NIPT
Non-invasive Prenatal Testing
Zdroj: Journal of Genetic Counseling, 26(6), 1348-1356. Kluwer Academic/Human Sciences Press Inc.
Journal of Genetic Counseling
Journal of Genetic Counseling, 26, 1348-1356
Journal of genetic counseling, 26(6), 1348-1356. Kluwer Academic/Human Sciences Press Inc.
van Schendel, R V, Page-Christiaens, G C M L, Beulen, L, Bilardo, C M, de Boer, M A, Coumans, A B C, Faas, B H W, van Langen, I M, Lichtenbelt, K D, van Maarle, M C, Macville, M V E, Oepkes, D, Pajkrt, E, Henneman, L & for the Dutch NIPT Consortium 2017, ' Women’s Experience with Non-Invasive Prenatal Testing and Emotional Well-being and Satisfaction after Test-Results ', Journal of Genetic Counseling, vol. 26, no. 6, pp. 1348-1356 . https://doi.org/10.1007/s10897-017-0118-3
Journal of Genetic Counseling, 26, 6, pp. 1348-1356
Journal of genetic counseling, 26(6), 1348-1356. SPRINGER
Journal of Genetic Counseling, 26(6), 1348-1356. Wiley
Journal of Genetic Counseling, 26(6), 1348. Kluwer Academic/Human Sciences Press Inc.
Journal of Genetic Counseling, 26(6), 1348-1356
ISSN: 1573-3599
1059-7700
DOI: 10.1007/s10897-017-0118-3
Popis: Increasingly, high-risk pregnant women opt for non-invasive prenatal testing (NIPT) instead of invasive diagnostic testing. Since NIPT is less accurate than invasive testing, a normal NIPT result might leave women less reassured. A questionnaire study was performed among pregnant women with elevated risk for fetal aneuploidy based on first-trimester combined test (risk ≥1:200) or medical history, who were offered NIPT in the nationwide Dutch TRIDENT study. Pre- and post-test questionnaires (n = 682) included measures on: experiences with NIPT procedure, feelings of reassurance, anxiety (State-Trait Anxiety Inventory, STAI), child-related anxiety (PRAQ-R), and satisfaction. The majority (96.1%) were glad to have been offered NIPT. Most (68.5%) perceived the waiting time for NIPT results (mean: 15 days, range 5–32) as (much) too long. Most women with a normal NIPT result felt reassured (80.9%) or somewhat reassured (15.7%). Levels of anxiety and child-related anxiety were significantly lower after receiving a normal NIPT result as compared to the moment of intake (p
Databáze: OpenAIRE
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