Understanding the Systems, Contexts, Behaviors, and Strategies of Parents Advocating for Their Children With Down Syndrome
| Autor: | Briana S. Nelson Goff, Mollie Reves, Jessica D. Cless, Robert Steele, Meghan Dyster, Kristen Krueger |
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| Rok vydání: | 2019 |
| Předmět: |
Adult
Male Parents 030506 rehabilitation Down syndrome Adolescent Developmental Disabilities Professional practice Ecological systems theory Child Advocacy Education Developmental psychology 03 medical and health sciences Social support Young Adult Intellectual Disability Adaptation Psychological Developmental and Educational Psychology medicine Humans 0501 psychology and cognitive sciences Child Community and Home Care 05 social sciences Infant Social Support Middle Aged medicine.disease Variety (cybernetics) Psychiatry and Mental health Child Preschool Pediatrics Perinatology and Child Health Child advocacy Female Down Syndrome 0305 other medical science Psychology Attitude to Health 050104 developmental & child psychology Healthcare system Qualitative research |
| Zdroj: | Intellectual and developmental disabilities. 57(2) |
| ISSN: | 1934-9556 |
| Popis: | In the current qualitative research study, we focused on understanding the ecological systems, contexts, behaviors, and strategies of parents (N = 435) advocating for their children with an intellectual and developmental disability diagnosis, specifically Down syndrome (DS). Based on the data analysis, parents of children with DS advocate for their children frequently, in a variety of settings, with different actions, attitudes, motivations, and outcomes. The most common settings where advocacy occurred were primarily school and healthcare systems. The goals of parents often included inclusiveness, equality, and acceptance, whereas a few parents reported advocating due to discrimination and judgment. Implications for further research and professional practice also are described. |
| Databáze: | OpenAIRE |
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