ETHICAL BOUNDARIES OF THE LEGAL REGULATION OF GENOME SEQUENCING IN RUSSIA AND ABROAD
Autor: | S S Zenin, T G Suranova, G N Suvorov |
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Rok vydání: | 2020 |
Předmět: |
Sociology of scientific knowledge
Internationality Whole Genome Sequencing Biochemistry (medical) Subject (philosophy) General Medicine Bioethics 030204 cardiovascular system & hematology DNA sequencing Russia 03 medical and health sciences Medical Laboratory Technology 0302 clinical medicine Order (exchange) Political science Humans Relevance (law) Normative 030211 gastroenterology & hepatology Set (psychology) Law and economics |
Zdroj: | Russian Clinical Laboratory Diagnostics. 65:458-463 |
ISSN: | 2412-1320 0869-2084 |
Popis: | The relevance of the chosen topic is due to the need to resolve ethical problems that arise in the framework of legal regulation of genome-wide sequencing in Russia and foreign countries. The purpose of this research is to form ethical principles that should become a reference point for law - making in this area. In order to achieve this goal, we have solved the tasks of studying the normative legal acts of Russia and a number of foreign countries from an ethical point of view. General scientific, private scientific and special methods of scientific knowledge (system-structural, formal-legal) are used. In order to comply with the ethical boundaries of legal regulation, to store access and protect full-genome sequencing data in Russia and foreign countries, it is proposed to develop a set of restrictions that prevent possible discrimination on genetic grounds, to create the necessary conditions for the inadmissibility of disclosure of personalized data, disclosure of information about a genetic disease to the subject and his relatives, as well as the boundaries of editing the genome of a human embryo. For the first time, the authors substantiate the need to establish clear ethical boundaries in the implementation of genome-wide sequencing in Russia based on foreign experience. |
Databáze: | OpenAIRE |
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