Privacy and Security Issues with Mobile Health Research Applications
| Autor: | Stacey A. Tovino |
|---|---|
| Rok vydání: | 2020 |
| Předmět: |
Information privacy
media_common.quotation_subject Internet privacy ComputingMilieux_LEGALASPECTSOFCOMPUTING Legislation 0603 philosophy ethics and religion Federal law Health data 03 medical and health sciences 0302 clinical medicine State (polity) Citizen science Humans Data Protection Act 1998 030212 general & internal medicine media_common Health Insurance Portability and Accountability Act Extramural business.industry Data Collection Research Health Policy 06 humanities and the arts General Medicine Mobile Applications Research Personnel Telemedicine United States Issues ethics and legal aspects Government Regulation 060301 applied ethics Business Confidentiality |
| Zdroj: | Journal of Law, Medicine & Ethics. 48:154-158 |
| ISSN: | 1748-720X 1073-1105 |
| DOI: | 10.1177/1073110520917041 |
| Popis: | This article examines the privacy and security issues associated with mobile application-mediated health research, concentrating in particular on research conducted or participated in by independent scientists, citizen scientists, and patient researchers. Building on other articles in this issue that examine state research laws and state data protection laws as possible sources of privacy and security protections for mobile research participants, this article focuses on the lack of application of federal standards to mobile application-mediated health research. As discussed in more detail below, the voluminous and diverse data collected by some independent scientists who use mobile applications to conduct health research may be at risk for unregulated privacy and security breaches, leading to dignitary, psychological, and economic harms for which participants have few legally enforceable rights or remedies under current federal law. Federal lawmakers may wish to consider enacting new legislation that would require otherwise unregulated health data holders to implement reasonable data privacy, security, and breach notification measures. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
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