Top Ten Tips Palliative Care Clinicians Should Know About Amyotrophic Lateral Sclerosis

Autor: Elizabeth Pedowitz, Luqi Chi, Joss C Cohen, Ambereen K. Mehta, Elyse A. Everett, Samuel Maiser, Jessica Besbris, Christopher A Jones
Rok vydání: 2020
Předmět:
Zdroj: Journal of Palliative Medicine. 23:842-847
ISSN: 1557-7740
1096-6218
DOI: 10.1089/jpm.2020.0046
Popis: Amyotrophic lateral sclerosis (ALS) is a rapidly progressive and fatal neurodegenerative disorder with enormous palliative care (PC) needs that begin at the time of diagnosis. Although it is an uncommon disease, clinicians who work in PC or hospice are likely to encounter ALS somewhat frequently given the needs of patients with ALS with regard to psychosocial support, symptom management, advance care planning (ACP), caregiver support, and end-of-life care. As such, PC clinicians should be familiar with the basic principles of ALS symptoms, treatments, disease course, and issues around ACP. This article, written by a team of neurologists and PC physicians, seeks to provide PC clinicians with tips to improve their comfort and skills caring for patients with ALS and their families.
Databáze: OpenAIRE