Top Ten Tips Palliative Care Clinicians Should Know About Amyotrophic Lateral Sclerosis
Autor: | Elizabeth Pedowitz, Luqi Chi, Joss C Cohen, Ambereen K. Mehta, Elyse A. Everett, Samuel Maiser, Jessica Besbris, Christopher A Jones |
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Rok vydání: | 2020 |
Předmět: |
Advance care planning
medicine.medical_specialty Palliative care Disease Disease course 03 medical and health sciences 0302 clinical medicine 030502 gerontology medicine Humans Amyotrophic lateral sclerosis Intensive care medicine General Nursing Terminal Care business.industry Symptom management Amyotrophic Lateral Sclerosis Palliative Care General Medicine medicine.disease Caregiver support Psychosocial support Hospice Care Anesthesiology and Pain Medicine 030220 oncology & carcinogenesis Hospice and Palliative Care Nursing 0305 other medical science business |
Zdroj: | Journal of Palliative Medicine. 23:842-847 |
ISSN: | 1557-7740 1096-6218 |
DOI: | 10.1089/jpm.2020.0046 |
Popis: | Amyotrophic lateral sclerosis (ALS) is a rapidly progressive and fatal neurodegenerative disorder with enormous palliative care (PC) needs that begin at the time of diagnosis. Although it is an uncommon disease, clinicians who work in PC or hospice are likely to encounter ALS somewhat frequently given the needs of patients with ALS with regard to psychosocial support, symptom management, advance care planning (ACP), caregiver support, and end-of-life care. As such, PC clinicians should be familiar with the basic principles of ALS symptoms, treatments, disease course, and issues around ACP. This article, written by a team of neurologists and PC physicians, seeks to provide PC clinicians with tips to improve their comfort and skills caring for patients with ALS and their families. |
Databáze: | OpenAIRE |
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