Youth Weigh In: Views on Advanced Neurotechnology for Drug-Resistant Epilepsy
| Autor: | Patrick J. McDonald, Farhad Udwadia, Viorica Hrincu, Mary B. Connolly, Judy Illes |
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| Rok vydání: | 2020 |
| Předmět: |
Male
Drug Resistant Epilepsy medicine.medical_specialty Adolescent Electric Stimulation Therapy Trust Article Interviews as Topic Young Adult 03 medical and health sciences Epilepsy 0302 clinical medicine Neurotechnology 030225 pediatrics medicine Humans Child Psychiatry British Columbia business.industry medicine.disease Treatment Outcome Personal Autonomy Pediatrics Perinatology and Child Health Female Neurology (clinical) Neurosurgery business 030217 neurology & neurosurgery |
| Zdroj: | J Child Neurol |
| ISSN: | 1708-8283 0883-0738 |
| Popis: | Background: Epilepsy affects over 500,000 children in North America of whom 30% have drug-resistant epilepsy. Advancements with neurotechnologies show promising benefits, but the perceptions of these procedures by youth is unknown. Methods: We conducted semistructured interviews with 10 youth in British Columbia, Canada who underwent procedures for drug-resistant epilepsy involving different forms of neurotechnology (subdural grids, vagus nerve stimulation, responsive neurostimulation). Interviews were analyzed using the constant comparative qualitative method. Results: Four major thematic categories emerged from the interviews. Treatment values, impact of the disorder, personal context, and impact of neurotechnology. Conclusions: Besides the predictable goal of seizure reduction, a desire for autonomy and the importance of trust in the medical team emerged as dominant values within the 4 thematic categories that were explicit to the use of new neurotechnologies for the management of drug-resistant epilepsy. |
| Databáze: | OpenAIRE |
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