Quantitative home-based assessment of Parkinson's symptoms: the SENSE-PARK feasibility and usability study

Autor: Walter Maetzler, Frank Larsen, Hilde Wangen, Øyvind Fagerbakke, Katrin S. Maier, Joaquim J. Ferreira, Catarina Godinho, Daisy Abreu, Ana T. Santos, Tom Isaacs, Janet M.T. van Uem, Josefa Domingos, Joy Duffen, Andrea Thoms, Peter Weber, Márcio Barra, Stefan Sollinger, Holm Graessner, Stefan Meckler, Raquel Lobo, Nilza Gonçalves, Helen Matthew, Ingvild Akeren, J. Artur Serrano, Markus A. Hobert
Přispěvatelé: Repositório da Universidade de Lisboa
Rok vydání: 2014
Předmět:
Self-assessment
Parkinson’s disease
Self-assessment
Home-based
Usability
Feasibility
SENSE-PARK
Male
medicine.medical_specialty
VDP::Medisinske Fag: 700::Helsefag: 800::Epidemiologi medisinsk og odontologisk statistikk: 803
Usability
MEDLINE
Clinical Neurology
Wearable computer
Monitoring
Ambulatory
SENSE-PARK
Pilot Projects
Faculty of Medicine
Home-based
Patient satisfaction
Phone
Medizinische Fakultät
instrumentation [Monitoring
Ambulatory]
methods [Monitoring
Ambulatory]
Medicine
ddc:6
Humans
Multicenter Studies as Topic
ddc:610
Aged
business.industry
article
Parkinson Disease
Feasibility
General Medicine
Balance board
Middle Aged
Patient Acceptance of Health Care
Home based
3. Good health
VDP::Medical disciplines: 700::Health sciences: 800::Epidemiology medical and dental statistics: 803
Patient Satisfaction
Physical therapy
Parkinson’s disease
Feasibility Studies
Patient Compliance
Female
Neurology (clinical)
business
diagnosis [Parkinson Disease]
Research Article
Zdroj: BMC Neurology
BMC neurology 15(1), 89 (2015). doi:10.1186/s12883-015-0343-z
Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Agência para a Sociedade do Conhecimento (UMIC)-FCT-Sociedade da Informação
instacron:RCAAP
BMC Neurology.-London : BioMed Central; 2015.-S.15:89:1-15:89:7.
ISSN: 1471-2377
DOI: 10.1186/s12883-015-0343-z
Popis: © 2015 Ferreira et al. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly credited. The Creative Commons Public Domain Dedication waiver (http:// creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
Background: Currently, assessment of symptoms associated with Parkinson's disease is mainly performed in the clinic. However, these assessments have limitations because they provide only a snapshot of the condition. Methods: The feasibility and usability of an objective, continuous and relatively unobtrusive system (SENSE-PARK System), which consists of wearable sensors (three worn during the day and one worn at night), a smartphone-based App, a balance board and computer software, was tested 24/7 over 12 weeks in a study including 22 PD patients. During the first four weeks of the study, patients did not get feedback about their performance, during the last eight weeks they did. The study included seven clinical visits with standardized interviews, and regular phone contact. The primary outcome was the number of drop-outs during the study. As secondary outcomes, the Post-Study System Usability Questionnaire (PSSUQ), score and information obtained from the standardized interviews were used to evaluate the usability of the system. Results: All patients completed the study. The participants rated the usability of the SENSE-PARK System with a mean score of 2.67 (±0.49) on the PSSUQ. The interviews revealed that most participants liked using the system and appreciated that it signaled changes in their health condition. Conclusions: This 12 week controlled study demonstrates that the acceptance level of PD patients using the SENSE-PARK System as a home-based 24/7 assessment is very good. Particular emphasis should be given to a user-friendly design. Motivation to wear such a system can be increased by providing direct feedback about the individual health condition.
This study was performed in the frame of the EU project SENSE-PARK, funded under the Seventh Framework Programme, Cooperation – ICT, Grant Agreement no. 288557.
Databáze: OpenAIRE
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