Satisfaction and discontent of Polish patients with biological therapy of rheumatic diseases : results of a multi-center questionnaire study
| Autor: | Jolanta Lewandowicz, Maria Szarecka, Zofia Kiełbik, Mariusz Korkosz, Jerzy Zajdel, Piotr Leszczyński, Wanda Lepiarz-Rusek, Maria Maciejowska-Roge, Dominik Majewski, Aleksandra Zoń-Giebel, Małgorzata Sochocka-Bykowska, Eugeniusz J. Kucharz, Mariusz Puszczewicz, Jadwiga Świkszcz-Gniadek, Jolanta Bucka, Wojciech Romanowski, Katarzyna Pawlak-Buś, Barbara Chara, Teresa Migas-Kukla, Aneta Bielińska, Irena Rosmus-Kuczia, Zbigniew Zdrojewski, Anna Kotulska, Piotr Wiland, Lucyna Szymczak-Bartz, Joanna Kowalska-Majka, Grzegorz Rozwadowski, Anna Felis-Giemza, Marzena Olesińska, Magdalena Kopeć-Mędrek, Bernadeta Luberda, Małgorzata Falenta-Hitnarowicz, Małgorzata Tłustochowicz, Maria Majdan, Katarzyna Smolik |
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| Jazyk: | angličtina |
| Rok vydání: | 2018 |
| Předmět: |
0301 basic medicine
rheumatoid arthritis medicine.medical_specialty Immunology Arthritis 03 medical and health sciences Psoriatic arthritis Rheumatology Internal medicine ankylosing spondylitis Immunology and Allergy Medicine Disadvantage Questionnaire study psoriatic arthritis Original Paper Ankylosing spondylitis Sleep quality business.industry medicine.disease Family life 030104 developmental biology biological therapy Rheumatoid arthritis juvenile idiopathic arthritis business |
| Zdroj: | Reumatologia |
| Popis: | ObjectivesBiologics are medications widely applied in the management of inflammatory rheumatic diseases. The drugs were found to be effective but their application is associated with some disadvantages. Medication with biologics is relatively expensive, and in Poland, it is carried out in specialized centers. The study was designed to evaluate various aspects of satisfaction and dissatisfaction of Polish patients treated with biologics.Material and methodsAn anonymous questionnaire was distributed in 23 Polish rheumatological centers involved in the treatment; 1212 returned questionnaires were used for analysis. Responses were received from 606 patients with rheumatoid arthritis, 427 with ankylosing spondylitis, 117 psoriatic arthritis, and 62 adult patients with juvenile idiopathic arthritis (in whom administration of the drugs had been introduced before they were 18 years old). The investigated group constituted about one-fifth of all rheumatic patients on biologics in Poland.ResultsA beneficial or very beneficial influence of the medication on the state of physical health was found mostly in patients with rheumatoid arthritis (51.3 and 30.5%) and ankylosing spondylitis (51.0 and 36.8%). Family life was improved by the treatment especially in patients with ankylosing spondylitis (40.7 and 35.6% beneficial and very beneficial, respectively), sleep quality and sexual life mostly in those with ankylosing spondylitis (beneficial/very beneficial influence 41.5/38.4, and 38.7/23.9, respectively). There was a rather small influence of biological treatment on the financial situation of the patients. In general, satisfaction with the treatment was evaluated as positive or very positive in 88% of all investigated patients. In a significant part of the patients, transportation to the medical center was considered as a disadvantage of the treatment. About one-third of the patients considered laboratory and imaging tests to be done before initiation of the medication as a difficulty, and for about 40% waiting time for qualification for the medication was a significant disadvantage. The route of drug administration was without importance for 4/5 of the patients.ConclusionsSumming up, the results were similar in the patients suffering from various diseases although those with psoriatic arthritis felt the highest satisfaction (possibly due to the positive aesthetic effect), and those with ankylosing spondylitis had significant improvement in sexual life (probably due to younger age). Relatively low satisfaction was found in patients with juvenile idiopathic arthritis. There was a small influence of medication on financial status of the patients. Application of biologics has few disadvantages and most of them are associated with the organization of health services (waiting time for the tests, transportation to the medical centers). |
| Databáze: | OpenAIRE |
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