A Salutogenic Perspective on End-of-Life Care among the Indigenous Sámi of Northern Fennoscandia
| Autor: | Anette Edin-Liljegren, Carol Tishelman, Lena Kroik, Krister Stoor |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
Advance care planning
Leadership and Management Applied psychology Sense of community Health Informatics end-of-life Nursing ethnic groups Indigenous Article 03 medical and health sciences 0302 clinical medicine Health Information Management sense of community coherence indigenous research salutogenesis 030212 general & internal medicine Social organization Sweden 030505 public health Health Policy Omvårdnad Extended family Sámi Focus group Salutogenesis Medicine 0305 other medical science Psychology End-of-life care |
| Zdroj: | Healthcare, Vol 9, Iss 766, p 766 (2021) Healthcare Volume 9 Issue 6 |
| ISSN: | 2227-9032 |
| Popis: | There is limited empirical data about both health and end-of-life (EoL) issues among the Indigenous Sámi of Fennoscandia. We therefore aimed to investigate experiences of EoL care and support among the Sámi, both from the Sámi community itself as well as from more formalized health and social care services in Sweden. Our primary data source is from focus group discussions (FGDs) held at a Sámi event in 2017 with 24 people, complemented with analysis of previously collected data from 15 individual interviews with both Sámi and non-Sámi informants familiar with dying, death and bereavement among Sámi “go-along” discussions with 12 Sámi, and individual interviews with 31 Sámi about advance care planning. After initial framework analysis, we applied a salutogenic model for interpretation, focusing on a sense of community coherence. We found a range of generalized resistance resources in relation to the Sámi community, which appeared to support EoL care situations, i.e., Social Organization Familiarity with EoL Care, Collective Cultural Heritage Expressions of Spirituality Support from Majority Care Systems and Brokerage. These positive features appear to support key components of a sense of community coherence, i.e., comprehensibility, meaningfulness and manageability. We also found relatively few, but notable deficits that may diminish the sense of community coherence, i.e., lack of communication in one’s own language orientation, familiarity and/or agreement in contacts with formal health and social care systems and/or support from extended family. The results suggest that there is a robust basis among Sámi for well-functioning EoL care a challenge is in developing supportive interactions with the majority health and social care systems that support and complement these structures, for partnership in developing care that is meaningful, comprehensible and manageable even in potentially difficult EoL situations. |
| Databáze: | OpenAIRE |
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