Female fertility in the cancer setting: availability and quality of online health information
| Autor: | Catharina C. M. Beerendonk, Alfred Rademaker, Willianne L.D.M. Nelen, Alexandra S. Rashedi, Antoinette Anazodo, Teresa K. Woodruff, Anne Marie de Man, Saskia F de Roo |
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| Rok vydání: | 2018 |
| Předmět: |
medicine.medical_specialty
media_common.quotation_subject Specialty Antineoplastic Agents 030209 endocrinology & metabolism Fertility 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Patient Education as Topic Neoplasms medicine Humans Fertility preservation Oncofertility media_common Internet 030219 obstetrics & reproductive medicine Information Dissemination business.industry Obstetrics and Gynecology Information quality General Medicine Readability Checklist Data Accuracy Health Literacy Reproductive Medicine Family medicine Female Comprehension business |
| Zdroj: | Human Fertility. 23:170-178 |
| ISSN: | 1742-8149 1464-7273 |
| DOI: | 10.1080/14647273.2018.1506891 |
| Popis: | As cancer survival rates continue to increase, so does the relevance of starting or expanding a family after cancer, impacting quality of life. However, the option of fertility preservation is not always addressed by physicians before treatment. In the meanwhile, many patients look for health information online. Although potentially helpful in the decision-making process, the Internet could also have adverse effects for this vulnerable patient group when information is incorrect. We aimed to assess the availability and quality of information on female oncofertility on websites of (inter)national oncology, fertility and oncofertility organizations. Availability was identified using an original checklist. Quality was measured by reliability (DISCERN and LIDA instruments), usability (LIDA instrument), and readability (Flesch Kincaid Grade Level test). Of all investigated websites, 52% contained information on oncofertility, with 32% containing a stand-alone page. Of those sites, the amount of treatment options covered were equivalent between specialty sites and general fertility and oncology sites (p = 0.07). The quality of information on treatment choices was the highest for oncofertility websites. Reliability and usability did not differ significantly between websites. No websites evaluated were at the recommended 7th–8th grade reading level. Availability and quality should be improved, and high-quality resources are recommended by physicians. |
| Databáze: | OpenAIRE |
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