Incorporating patient perspectives in health technology assessments and clinical practice guidelines
| Autor: | Raija Sipilä, Hannes Enlund, Jorma Komulainen, Marjukka Mäkelä, Piia Rannanheimo, Katri Hämeen-Anttila, Eeva Mäkinen |
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| Rok vydání: | 2015 |
| Předmět: |
Male
medicine.medical_specialty Technology Assessment Biomedical Alternative medicine Pharmaceutical Science Pharmacy 03 medical and health sciences 0302 clinical medicine Nursing Health care Medicine Humans 030212 general & internal medicine Patient participation Finland business.industry 030503 health policy & services Communication Health technology Focus Groups Focus group Comprehension Clinical Practice Practice Guidelines as Topic Female Patient Participation 0305 other medical science business Qualitative research |
| Zdroj: | Research in socialadministrative pharmacy : RSAP. 12(6) |
| ISSN: | 1934-8150 |
| Popis: | Background Ensuring patient involvement in health technology assessments (HTAs) and clinical practice guidelines (CPGs) is important. However, the goals and methods of such involvement are not always clear. Objectives The aim of this study was to 1) discover ways to involve patients in HTA and CPG processes, 2) describe challenges, and 3) find ways of informing patients about HTAs and CPGs in Finland. Methods As part of a one-day seminar targeted at representatives of patient organizations (POs), 3, 1-h focus group discussions were held ( n = 20, with 14 PO representatives). PO representatives included real patients and health care professionals working in the organizations. The discussions were tape-recorded, transcribed, and thematically analyzed. Results Focus group participants highlighted the importance of gathering patient views from a group of patients, rather than individuals. Surveys through POs were the most frequently mentioned means of gathering patients' views. PO representatives reported interest in cooperating in HTA and CPG processes. The most often mentioned challenges were finding appropriate representatives for the target group and conveying information about HTAs and CPGs to patients. Multichannel communication was seen as essential. Furthermore the information should be readable, comprehensible, tailored, reliable, reusable, complementary, and timely. Conclusions Possible strategies to involve patients in HTA and CPG processes were incorporating patient representatives in the CPG and HTA groups, offering timely possibility to participate, and ensuring reporting with clear and unambiguous language. The main identified challenge was finding appropriate representatives of the target group. The role of POs was seen as important particularly when informing the patients. |
| Databáze: | OpenAIRE |
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