Enhancing Autonomy in Biobank Decisions: Too Much of a Good Thing?
| Autor: | Debra J. H. Mathews, Sonja I. Ziniel, Noelle Huntington, Sarah K. Savage, Ingrid A. Holm, Kurt D. Christensen, Phoebe B. Mitchell, Elissa R. Weitzman, Robert C. Green |
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| Rok vydání: | 2018 |
| Předmět: |
Adult
Male Parents 0301 basic medicine Biomedical Research Social Psychology media_common.quotation_subject Personal Satisfaction 030105 genetics & heredity Article Education 03 medical and health sciences parasitic diseases Humans Child Set (psychology) Biological Specimen Banks media_common Informed Consent Communication Patient Preference Bioethics Biobank Preference Female Return of results Psychology Social psychology Autonomy |
| Zdroj: | J Empir Res Hum Res Ethics |
| ISSN: | 1556-2654 1556-2646 |
| Popis: | The opportunity to receive individual research results (IRRs) in accordance with personal preferences may incentivize biobank participation and maximize perceived benefit. This trial investigated the relationship between parents’ preferences and intent to participate (ITP) in biobank research utilizing their child’s genetic information. We randomized parents of pediatric patients to four hypothetical biobanks, one of which employed a preference-setting model for return of results regarding their child. ITP was highest among those desiring all types of IRRs (93.3%) and decreased as participants became increasingly selective with their preferences ( p < .0001). We demonstrated that most parents would participate in a biobank that allows for preference setting; however, those who set preferences to receive a narrower set of IRRs are less likely to participate. |
| Databáze: | OpenAIRE |
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