The patient with a complex chronic respiratory disease: a specialist of his own life?
| Autor: | Emiel F.M. Wouters, Frits M.E. Franssen, Martijn A. Spruit, Daisy J.A. Janssen, Lowie E.G.W. Vanfleteren, Ingrid M. L. Augustin, Sarah Houben-Wilke, Birgit B. R. E. F. Wouters, Rosita A. H. Stevens |
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| Přispěvatelé: | Promovendi PHPC, Metamedica, RS: CAPHRI - R4 - Health Inequities and Societal Participation, RS: FSE DACS IDS, Pulmonologie, RS: NUTRIM - R3 - Respiratory & Age-related Health, RS: NUTRIM - R3 - Chronic inflammatory disease and wasting, Promovendi NTM, Afdeling Onderwijs FHML, MUMC+: MA Longziekten (3) |
| Rok vydání: | 2017 |
| Předmět: |
REHABILITATION
Pulmonary and Respiratory Medicine self-management medicine.medical_specialty PERCEPTIONS medicine.medical_treatment shared decision making COMMUNICATION Disease PREFERENCES OBSTRUCTIVE PULMONARY-DISEASE 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) QUALITY-OF-LIFE INFORMAL CAREGIVERS Health care medicine Humans Immunology and Allergy 030212 general & internal medicine Disease management (health) Intensive care medicine Physician-Patient Relations VALUE CO-CREATION Interdisciplinary treatment Rehabilitation Self-management business.industry Chronic obstructive pulmonary disease Respiratory disease Public Health Environmental and Occupational Health Respiration Disorders medicine.disease 030228 respiratory system value-based health care HEALTH-CARE Quality of Life expert patient Patient Participation business |
| Zdroj: | Expert Review of Respiratory Medicine, 11(12), 919-924. Routledge/Taylor & Francis Group |
| ISSN: | 1747-6356 1747-6348 |
| DOI: | 10.1080/17476348.2017.1392242 |
| Popis: | Introduction: The independent and central role of the patient with a complex chronic respiratory disease in targeted, personalized disease management strategies is becoming increasingly important. Patients are the ones living with the disease and are finally responsible for their lives underlining their role as essential members of the interdisciplinary treatment team.Areas covered: The present paper narratively reviews existing research and discusses the special, as well as specialized, role of the patient with a complex chronic respiratory disease in the healthcare system and highlights fundamental elements of the (future) relationship between patient and healthcare professionals.Expert commentary: Since the chronic respiratory disease at hand is part of the patient's entire life, we need holistic, personalized approaches optimizing patients' quality of life by not only treating the disease but considering the patients' whole environment and where healthcare professionals and patients are co-creating value care. |
| Databáze: | OpenAIRE |
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