Survey of Potential Cancer Registry Items to Enhance the Usefulness of Cancer Registry Data
| Autor: | Yoo-Kyung Boo, Hyun-Sook Lim, Young-Joo Won |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2019 |
| Předmět: |
0301 basic medicine
medicine.medical_specialty data collection availability Cancer registration behavioral disciplines and activities 03 medical and health sciences 0302 clinical medicine Neoplasms Surveys and Questionnaires Republic of Korea Medicine Humans Registries Stage (cooking) Date of birth Data Management Data collection Korea business.industry Questionnaire Cancer General Medicine medicine.disease Prognosis Hospitals Test (assessment) Cancer registry variable 030104 developmental biology 030220 oncology & carcinogenesis Family medicine business Research Article |
| Zdroj: | Asian Pacific Journal of Cancer Prevention : APJCP |
| ISSN: | 2476-762X 1513-7368 |
| Popis: | Background: Cancer registry data can help plan for cancer services and to identify where further progress is needed, in order to improve the lives of patients with cancer. This study investigated the possibility of collecting additional information and the priority of the information by examining other cancer registry items. We aimed to suggest additional data items to be collected to enhance the usefulness of cancer registry data. Methods: We examined items that could potentially be added by comparing the cancer registration items in five foreign registries and large hospitals in Korea. Based on the foreign and domestic hospital cancer registry data, a questionnaire survey was administered to 272 cancer registry workers nationwide and 10 cancer experts to investigate the possibility of expanding the variables. The proportion and rank of each item were analyzed. Results: There were similar items for demographic information and cancer diagnosis between foreign cancer registries and the Korea Central Cancer Registry (KCCR). However, the KCCR had fewer items for staging, treatment, and follow-up. There were 29 items to be collected with high priority. Items under demographic information included date of birth, race and country of birth. Items for cancer diagnosis included type of cancer, smoking history and type of pathologic test. Treatment information included the date of treatment, chemotherapy and radiation. Items under the stage and prognostic factors included TNM stage, collaborative stage, and comorbidities. Finally, items under follow-up information included survival, cancer state and recurrence information. Conclusions: Cancer registration workers and cancer experts generally agreed on the need to expand the essential items for cancer registration. The findings of this study will be useful for devising plans to expand cancer registration items. |
| Databáze: | OpenAIRE |
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