Clinical service use as people with Attention Deficit Hyperactivity Disorder transition into adolescence and adulthood: a prospective longitudinal study

Autor: James Findon, Karen Glaser, Declan G. Murphy, Hanna Eklund, Hannah Hayward, Deirdre Howley, Kiriakos Xenitidis, Jennifer Beecham, Philip Asherson, Tim Cadman
Jazyk: angličtina
Rok vydání: 2016
Předmět:
Male
Parents
Longitudinal study
medicine.medical_specialty
H Social Sciences (General)
Transition to Adult Care
Young adulthood
Adolescent
Attention Deficit Disorder with Hyperactivity/therapy
Comorbidity
Gee
Attention deficit hyperactivity disorder
Interviews as Topic
03 medical and health sciences
Young Adult
0302 clinical medicine
RA0421 Public health. Hygiene. Preventive Medicine
Surveys and Questionnaires
mental disorders
medicine
Humans
030212 general & internal medicine
Longitudinal Studies
Young adult
Psychiatry
business.industry
Public health
Health Policy
Caregiver burden
Health Services
medicine.disease
Clinical service use
United Kingdom
Adolescence
Caregivers
Attention Deficit Disorder with Hyperactivity
Transition
Cohort
H1
Female
business
Health Services/utilization
030217 neurology & neurosurgery
Research Article
Zdroj: Eklund, H, Cadman, T, Findon, J, Hayward, H, Howley, D, Beecham, J, Xenitidis, K, Murphy, D, Asherson, P & Glaser, K 2016, ' Clinical service use as people with Attention Deficit Hyperactivity Disorder transition into adolescence and adulthood : a prospective longitudinal study ', BMC Health Services Research, vol. 16, 248 . https://doi.org/10.1186/s12913-016-1509-0
BMC Health Services Research
Eklund, H, Cadman, T, Findon, J, Hayward, H, Howley, D, Beecham, J, Xenitidis, K, Murphy, D, Asherson, P & Glaser, K 2016, ' Clinical service use as people with Attention Deficit Hyperactivity Disorder transition into adolescence and adulthood : a prospective longitudinal study ', BMC Health Services Research, vol. 16, no. 1 . https://doi.org/10.1186/s12913-016-1509-0
ISSN: 1472-6963
DOI: 10.1186/s12913-016-1509-0
Popis: Background While Attention Deficit Hyperactivity Disorder (ADHD) often persists into adulthood, little is known about the needs and service use among adolescents and young adults with ADHD. The present study followed-up a cohort diagnosed with ADHD as children and assessed their: 1) needs, 2) correlates of contact with clinical services, and 3) experiences of transition from child to adult health services. Methods Ninety one young people aged 14–24 were recruited from the UK subset of the International Multi-Centre ADHD Genetics (IMAGE) Project. Affected young people and parents conducted face-to-face interviews and self-completion questionnaires including a modified version of the Client Services Receipt Inventory, The Barkley’s ADHD rating scale, The Clinical Interview Schedule-Revised, and the Zarit Burden Interview. Changes in key need characteristics (e.g. ADHD symptoms and impairments) over a 3-year period were examined using fixed effect models. Generalised Estimating Equations (GEE) were used to explore how key characteristics (such as ADHD symptoms) were associated with contact with clinical services across the three years. Results At baseline 62 % met diagnostic criteria for ADHD and presented with a range of ADHD related impairments, psychiatric comorbidities, and significant caregiver burden. While ADHD symptoms and related impairments lessened significantly over the three years, psychiatric comorbidities and caregiver burden remained stable. The strongest correlate of contact with clinical services was age (OR 0.65 95 % CI 0.49–0.84) with the odds of reported contact with clinical services decreasing by 35 % for each year increase in age at baseline and by 25 % for each year increase in age over time. Only 9 % of the sample had experienced a transfer to adult services, with the majority reporting unmet needs in healthcare transition. Conclusions Despite continuing needs, few were in contact with adult health services or had received sufficient help with transition between child and adult health services. The main determinant of health service use for adolescents and young adults with ADHD is age – not needs. Service models should address the needs of ADHD individuals who are no longer children. Electronic supplementary material The online version of this article (doi:10.1186/s12913-016-1509-0) contains supplementary material, which is available to authorized users.
Databáze: OpenAIRE
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