Adapting the Portuguese dignity question framework for adolescents: ages 10-18
| Autor: | Sara Albuquerque, Filipa Fareleira, Bárbara Antunes, Maria Ana Sobral, Petra Chaves, Miguel Julião, Duarte da Silva Soares, Paulo Faria de Sousa, Daniela Runa, Célia Gonçalves, Ana João Santos, Harvey Max Chochinov |
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| Přispěvatelé: | Julião, Miguel [0000-0001-9283-5045], Antunes, Bárbara [0000-0003-1655-7391], Fareleira, Filipa [0000-0002-7312-2178], Apollo - University of Cambridge Repository |
| Rok vydání: | 2020 |
| Předmět: |
Male
medicine.medical_specialty Adolescent Psychometrics media_common.quotation_subject Dignity Therapy Question Framework Affect (psychology) Adolescents Psychology clinic Respect 03 medical and health sciences Dignity 0302 clinical medicine 030502 gerontology Informed consent Surveys and Questionnaires medicine Humans Conversation Dignity therapy Child General Nursing media_common Palliative Care General Medicine Ambiguity Translating Pediatric palliative care language.human_language Psychiatry and Mental health Clinical Psychology Adolescent Behavior 030220 oncology & carcinogenesis Family medicine language Portuguese adaptation and validation Female Portuguese 0305 other medical science Psychology |
| ISSN: | 1478-9515 |
| Popis: | ObjectiveDignity therapy (DT) is well established in adult populations, and it is likely that it could benefit younger people. This study aimed to adapt the adult Portuguese DT question framework for adolescents (DT-QF-Adol) (ages 10–18).MethodFive stages were followed: (1) the Portuguese DT-QF for adults was adapted for adolescents with the original author's collaboration, (2) an expert committee provided feedback on the adapted version, (3) an initial consensus version of the DT-QF-Adol was created, (4) expert committee consult affirmed final consensus, and (5) validation stage with a sample of 17 adolescents followed in ambulatory psychology clinic.ResultsDT's original author endorsed the final Portuguese DT-QF-Adol, reinforcing that it captures the fundamental dimensions of DT. There was 100% agreement on the final consensus version and defined age group (10–18 years old). Twenty adolescents were invited to participate, and 17 were included after informed consent was obtained; 53% were female. The average age was 12.7 years. The interviewed adolescents reported that the DT-QF-Adol was clear, and they did not identify any ambiguity or difficulty in answering any of the questions. They assumed that this information could positively affect the way parents and friends see and cared for them, permitting others to understand their concerns and preferences. Participants felt that the DT-QF-Adol could be a good starting point for a conversation with their loved ones. Although they did not consider vital for health professionals to access their answers, they strongly felt that the DT-QF-Adol might be essential to sick adolescents and they would recommend it to others.Significance of resultsWe developed a DT-QF of nine questions for Portuguese adolescents (DT-QF-Adol), coined Protocolo de Perguntas da Terapia da Dignidade para Adolescentes — 10–18 anos. This tool can potentially be considered a good addition for pediatric palliative care. |
| Databáze: | OpenAIRE |
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