Pediatric to Adult Care Transition: Perspectives of Young Adults With Sickle Cell Disease
| Autor: | Kimberly M. Wesley, Jerlym S. Porter, Jane S. Hankins, Mimi S. Zhao, Rebecca Rupff |
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| Rok vydání: | 2017 |
| Předmět: |
Adult
Male Gerontology Health Knowledge Attitudes Practice Transition to Adult Care Pediatrics medicine.medical_specialty Attitude of Health Personnel Medication adherence Anemia Sickle Cell Adult care Disease Young Adult 03 medical and health sciences 0302 clinical medicine Surveys and Questionnaires 030225 pediatrics Developmental and Educational Psychology medicine Humans 030212 general & internal medicine Young adult Qualitative Research Adult health Transition (fiction) digestive oral and skin physiology Professional-Patient Relations Focus Groups Models Theoretical Focus group Checklist Pediatrics Perinatology and Child Health Female Health Services Research Psychology Regular Articles Qualitative research |
| Zdroj: | Journal of Pediatric Psychology. 42:1016-1027 |
| ISSN: | 1465-735X 0146-8693 |
| Popis: | Objectives The aim of this study was to explore perspectives of transition and transition readiness of young adult patients (YAs) with sickle cell disease (SCD) who have transitioned to adult health care. Methods In all, 19 YAs with SCD (ages 18-30 years) participated in one of three focus groups and completed a brief questionnaire about transition topics. Transcripts were coded and emergent themes were examined using the social-ecological model of adolescent and young adult readiness for transition (SMART). Results Themes were consistent with most SMART components. Adult provider relationships and negative medical experiences emerged as salient factors. YAs ranked choosing an adult provider, seeking emergency care, understanding medications/medication adherence, knowing SCD complications, and being aware of the impact of health behaviors as the most important topics to include in transition programming. Conclusions The unique perspectives of YAs can inform the development and evaluation of SCD transition programming by incorporating the identified themes. |
| Databáze: | OpenAIRE |
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