Paper 2: EUROCAT public health indicators for congenital anomalies in Europe
| Autor: | Khoshnood, B., Greenlees, R., Loane, M., Dolk, H., EUROCAT Project Management Committee, EUROCAT Working Group, Barišić, Ingeborg |
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| Přispěvatelé: | Recherche Epidémiologique en Santé Périnatale et Santé des Femmes et des Enfants (UMR_S 953), Université Paris-Sud - Paris 11 (UP11)-Université Pierre et Marie Curie - Paris 6 (UPMC)-Université Paris Descartes - Paris 5 (UPD5)-Institut National de la Santé et de la Recherche Médicale (INSERM), EUROCAT Central Registry, Institute for Nursing Research-University of Ulster, the EUROCAT Program Management Committee and a EUROCAT working group, Debs, Nayla, Recherche Epidémiologique en Santé Périnatale et Santé des Femmes et des Enfants ( UMR_S 953 ), Institut National de la Santé et de la Recherche Médicale ( INSERM ) -Université Paris Descartes - Paris 5 ( UPD5 ) -Université Pierre et Marie Curie - Paris 6 ( UPMC ) -Université Paris-Sud - Paris 11 ( UP11 ) |
| Rok vydání: | 2011 |
| Předmět: |
Embryology
Pediatrics MESH: Registries IMPACT MESH : Stillbirth Disease MESH: Abortion Eugenic Abortion DISEASE MESH: Perinatal Mortality MESH: Pregnancy 0302 clinical medicine Pregnancy TERMINATION Prenatal Diagnosis Pediatric surgery Health Status Indicators MESH : Female Neural Tube Defects Registries 030212 general & internal medicine Public H MESH : Malta MESH : Ukraine [ SDV.SPEE ] Life Sciences [q-bio]/Santé publique et épidémiologie MESH: Congenital Abnormalities General Medicine Stillbirth Congenital Anomalies MESH : Neural Tube Defects 3. Good health Europe MESH: Stillbirth MESH : Perinatal Mortality MESH: Malta Gestation Female Public Health MESH : Health Status Indicators BURDEN Ukraine MESH: Public Health Abortion Eugenic medicine.medical_specialty Down syndrome MESH : Public Health MESH : Europe MESH: Ukraine MESH: Neural Tube Defects MESH : Fetal Death MESH : Abortion Eugenic Prenatal diagnosis Article Congenital Abnormalities 03 medical and health sciences MESH: Health Status Indicators medicine Indicators Humans MESH: Prenatal Diagnosis Fetal Death MESH : Prenatal Diagnosis Perinatal Mortality MESH: Humans congenital anomalies Malta business.industry MORTALITY Public health RENAC MESH : Humans MESH: Down Syndrome MESH : Congenital Abnormalities Estados de Saúde e de Doença medicine.disease MESH : Down Syndrome indicators MESH : Pregnancy [SDV.SPEE] Life Sciences [q-bio]/Santé publique et épidémiologie Pediatrics Perinatology and Child Health RISK-FACTORS MESH: Fetal Death [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie MESH: Europe Down Syndrome business MESH: Female MESH : Registries 030217 neurology & neurosurgery Developmental Biology |
| Zdroj: | Birth Defects Research Part A: Clinical and Molecular Teratology Birth Defects Research Part A: Clinical and Molecular Teratology, Wiley, 2011, 91 Suppl 1, pp.S16-22. ⟨10.1002/bdra.20776⟩ Birth Defects Research Part A: Clinical and Molecular Teratology, 2011, 91 Suppl 1, pp.S16-22. ⟨10.1002/bdra.20776⟩ Birth Defects Research Part A: Clinical and Molecular Teratology, Wiley, 2011, 91 Suppl 1, pp.S16-22. 〈10.1002/bdra.20776〉 |
| ISSN: | 1542-0752 1542-0760 |
| DOI: | 10.1002/bdra.20776 |
| Popis: | OBJECTIVE The purpose of this article is to present the specific public health indicators recently developed by EUROCAT that aim to summarize important aspects of the public health impact of congenital anomalies in a few quantitative measures. METHODS The six indicators are: (1) congenital anomaly perinatal mortality, (2) congenital anomaly prenatal diagnosis prevalence, (3) congenital anomaly termination of pregnancy, (4) Down syndrome livebirth prevalence, (5) congenital anomaly pediatric surgery, and (6) neural tube defects (NTD) total prevalence. Data presented for this report pertained to all cases (livebirths, fetal deaths, or stillbirths after 20 weeks of gestation and terminations of pregnancy for fetal anomaly [TOPFA]) of congenital anomaly from 27 full member registries of EUROCAT that could provide data for at least 3 years during the period 2004 to 2008. Prevalence of anomalies, prenatal diagnosis, TOPFA, pediatric surgery, and perinatal mortality were calculated per 1000 births. RESULTS The overall perinatal mortality was approximately 1.0 per 1000 births for EUROCAT registries with almost half due to fetal and the other half due to first week deaths. There were wide variations in perinatal mortality across the registries with the highest rates observed in Dublin and Malta, registries in countries where TOPFA are illegal, and in Ukraine. The overall perinatal mortality across EUROCAT registries slightly decreased between 2004 and 2008 due to a decrease in first week deaths. The prevalence of TOPFA was fairly stable at about 4 per 1000 births. There were variations in livebirth prevalence of cases typically requiring surgery across the registries; however, for most registries this prevalence was between 3 and 5 per 1000 births. Prevalence of NTD decreased by about 10% from 1.05 in 2004 to 0.94 per 1000 in 2008. CONCLUSION It is hoped that by publishing the data on EUROCAT indicators, the public health importance of congenital anomalies can be clearly summarized to policy makers, the need for accurate data from registries emphasized, the need for primary prevention and treatment services highlighted, and the impact of current services measured. Birth Defects Research (Part A), 2011.© 2011 Wiley-Liss, Inc. |
| Databáze: | OpenAIRE |
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