The impact of prolonged disorders of consciousness on the occupational life of family members
| Autor: | Andrew McVicar, Karen E. Elliott |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Adult
Employment Time Factors Adolescent media_common.quotation_subject Disorders of consciousness Developmental psychology Interviews as Topic 03 medical and health sciences Young Adult 0302 clinical medicine Arts and Humanities (miscellaneous) Surveys and Questionnaires medicine Humans Family Longitudinal Studies Applied Psychology Qualitative Research media_common Aged 030503 health policy & services Rehabilitation Minimally conscious state Middle Aged medicine.disease Family member Neuropsychology and Physiological Psychology Consciousness Disorders Consciousness 0305 other medical science Psychology 030217 neurology & neurosurgery |
| Zdroj: | Neuropsychological rehabilitation. 28(8) |
| ISSN: | 1464-0694 |
| Popis: | The impact of vegetative state (VS) and minimally conscious states (MCSs) on an individual is devastating. VS and MCSs may be transitional towards recovery, but may become permanent. Although devastating for the individual the nature of these conditions also has a profound effect on the family. This study examined the impact on the family member and the changes in the individuals' occupation. Six participants (spouses, partners or parents) were recruited to the study. Mixed methods were adopted to meet the requirements of the research and participants. Data were collected at 6 and 12 months post-injury, using time diaries, a questionnaire and semi-structured interviews. At 6 months post-injury the greatest amount of carers' time was allocated to occupations involving the person in a Disorder of Consciousness and less time to social and leisure activities. Participants had difficulty viewing the future, lacked the desire or capacity to engage in previously enjoyed activities. At 12 months those impacts were still evident although changing. The transition to balanced occupational activity is slow, requiring a number of catalysts to change. A conceptual framework for a return to balance is provided, and guidance on advice from family members to families in a similar situation is given. |
| Databáze: | OpenAIRE |
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