Symptom complaints and impact on functioning in youth with hypermobile Ehlers–Danlos syndrome
| Autor: | Susan T. Tran, Marissa L. Koven, Brad T. Tinkle, Carolyn Turek, Julia S Golden, Anjana Jagpal |
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| Rok vydání: | 2019 |
| Předmět: |
Male
Pediatrics medicine.medical_specialty Connective Tissue Disorder Adolescent Pain Anxiety 03 medical and health sciences 0302 clinical medicine Activities of Daily Living medicine Humans Fatigue Depression (differential diagnoses) 030203 arthritis & rheumatology Depression Symptom management business.industry medicine.disease Functional disability Ehlers–Danlos syndrome Pediatrics Perinatology and Child Health Ehlers-Danlos Syndrome Female medicine.symptom business 030217 neurology & neurosurgery |
| Zdroj: | Journal of Child Health Care. 24:444-457 |
| ISSN: | 1741-2889 1367-4935 |
| DOI: | 10.1177/1367493519867174 |
| Popis: | Hypermobile Ehlers–Danlos syndrome (hEDS), a genetic connective tissue disorder, involves several body systems which makes symptom management and functioning difficult. The aim of this study was to understand pediatric hEDS patients’ symptoms and primary complaints. Additionally, we examined the cumulative impact of symptoms on physical and psychological functioning. Thirty-four youth with hEDS were recruited from a genetics clinic and reported the hardest thing about having hEDS, their pain, fatigue, physical symptoms, functional disability, anxiety, and depression. Physical symptoms (pain and fatigue) and limitations (keeping up with friends) were reported as the most difficult parts of having hEDS. A higher number of somatic symptoms was the strongest predictor of disability, anxiety, and depression. Physical symptoms are subjectively distressing and significantly related to impairments in physical and psychological functioning. Thus, addressing these varied symptoms in treatment may yield better functioning in youth with hEDS. |
| Databáze: | OpenAIRE |
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