Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities?
| Autor: | Anita Gjermestad, Halvor Hanisch, Synne Kristin Nese Skarsaune |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2021 |
| Předmět: |
business.industry
Multiple disabilities Reproduction (economics) media_common.quotation_subject Rehabilitation Internet privacy Ethnography Dependency Humanities and social science Creative commons Self-determination Phenomenology (philosophy) Attribution business Psychology persons with profound intellectual and multiple disabilities dependency self-determination ethnography phenomenology embodiment License media_common |
| Zdroj: | Scandinavian Journal of Disability Research; Vol 23, No 1 (2021); 317–327 317–327 Scandinavian Journal of Disability Research |
| ISSN: | 1745-3011 |
| Popis: | This is an open-access article distributed under the terms of the Creative Commons Attribution 4.0 International License (CC-BY 4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. Self-determination is often equated with independence and individual choices, which limits its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to their dependency. This paper challenges the notion of independence by arguing for a rethinking of self-determination that is sensitive to lives characterised by dependency and non-verbal being. An ethnographic study informed by phenomenology emphasising embodiment shed light on how self-determination can unfold in the lives of persons with PIMD in relationships with professionals. These data are engaged in a theoretical discussion, dialoguing with theories of self-determination and ethics of care. We advocate that a rethinking involving embodied communication, partnership and ongoing processes of being understood can offer a sound way of grasping the phenomenon of self-determination, both for persons with and without PIMD. |
| Databáze: | OpenAIRE |
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