Measurement properties of Patient Reported Outcomes Measurement Information System domains for children with type 1 diabetes
| Autor: | Ashima Singh, Mahua Dasgupta, Rosanna Fiallo-Scharer, Pippa Simpson, Dawn Retherford, Julie A. Panepinto |
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| Rok vydání: | 2020 |
| Předmět: |
Male
medicine.medical_specialty Patient-Reported Outcomes Measurement Information System Adolescent Health Status Endocrinology Diabetes and Metabolism 030209 endocrinology & metabolism Article 03 medical and health sciences 0302 clinical medicine Cronbach's alpha Item response theory Internal Medicine medicine Humans Muscle Strength Patient Reported Outcome Measures 030212 general & internal medicine Child Exercise Reliability (statistics) Glycemic Glycated Hemoglobin Type 1 diabetes business.industry Reproducibility of Results Construct validity medicine.disease Cross-Sectional Studies Diabetes Mellitus Type 1 Pediatrics Perinatology and Child Health Physical therapy Female Self Report Analysis of variance business Information Systems |
| Zdroj: | Pediatr Diabetes |
| ISSN: | 1399-5448 1399-543X |
| DOI: | 10.1111/pedi.13134 |
| Popis: | OBJECTIVE: Patient Reported Outcomes Measurement Information System (PROMIS) includes numerous domains to assess functioning among the pediatric population. These domains, however, have not been evaluated for use in children with type 1 diabetes (T1D). The objective of this study was to determine the measurement properties of PROMIS domains (pain behavior, pain quality, physical stress experience, physical activity, strength impact, and profile-25) in children with T1D. METHODS: This is a cross-sectional study of children with T1Drecruited from tertiary care facilities. To determine construct validity, we compared PROMIS T-scores between known-groups based on (a) glycemic control, hemoglobin A1c (HbA1c%) and (b) self-reported general health, using t test or analysis of variance. Reliability was determined using Cronbach’s alpha and item response theory reliability. We also determined agreement between parent-proxy and child self-report PROMIS scores. RESULTS: Our study included 192 children, mean age 12.7 (SD = 2.9) years, eligible to self-report PROMIS surveys. There were significant differences in physical stress experience and pain intensity between children with HbA1c < 10% and those with HbA1c ≥ 10%. There also were significant differences in T-scores for all domains except physical function mobility and strength impact among children with poor/fair, good, very good/excellent general health. All valid domains had reliability >0.70. More than 40% of child-parent pairs were in agreement, with intraclass correlations coefficients (ICC) ranging between 0.41 and 0.63 for all domains, except pain behavior (%agreement = 23%; ICC = 0.29). CONCLUSIONS: Most of the PROMIS domains tested are valid, reliable, and able to differentiate children with T1D who report different general health states. There is moderate agreement between child-parent pairs for all domains except pain behavior. |
| Databáze: | OpenAIRE |
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