A Culturally Sensitive Web-based Intervention to Improve Living Donor Kidney Transplant Among African Americans
| Autor: | Carlos Zayas, Laura McPherson, Rachel E. Patzer, Erica Hartmann, Jennie P. Perryman, Stephen O. Pastan, Derek Dubay, Nakeva Redmond, Kimberly R. Jacob Arriola, Laura L. Mulloy |
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| Rok vydání: | 2018 |
| Předmět: |
kidney transplant
medicine.medical_specialty 030232 urology & nephrology Disease 030204 cardiovascular system & hematology lcsh:RC870-923 Kidney transplant law.invention 03 medical and health sciences 0302 clinical medicine Randomized controlled trial law Clinical Research Intervention (counseling) Medicine Web application Kidney transplantation intervention education business.industry lcsh:Diseases of the genitourinary system. Urology medicine.disease 3. Good health Transplantation Nephrology Family medicine business Kidney disease |
| Zdroj: | Kidney International Reports Kidney International Reports, Vol 4, Iss 9, Pp 1285-1295 (2019) |
| ISSN: | 2468-0249 |
| Popis: | Introduction: There are pervasive racial disparities in access to living donor kidney transplantation, which for most patients with end-stage renal disease (ESRD) represents the optimal treatment. We previously developed a theory-driven, culturally sensitive intervention for African American (AA) patients with kidney disease called Living ACTS (About Choices in Transplantation and Sharing) as a DVD and booklet, and found this intervention was effective in increasing living donor transplant knowledge. However, it is unknown whether modifying this intervention for a Web-based environment is effective at increasing access to living donor transplantation. Methods: We describe the Web-based Living ACTS study, a multicenter, randomized controlled study designed to test the effectiveness of a revised Living ACTS intervention in 4 transplant centers in the southeastern United States. The intervention consists of a Web site with 5 modules: Introduction, Benefits and Risks, The Kidney Transplant Process, Identifying a Potential Kidney Donor, and ACT Now (which encourages communication with friends and family about transplantation). Results: This study will enroll approximately 800 patients from the 4 transplant centers. The primary outcome is the percentage of patients with at least 1 inquiry from a potential living donor among patients who receive Living ACTS as compared with those who receive a control Web site. Conclusion: The results from this study are expected to demonstrate the effectiveness of an intervention designed to increase access to living donor transplantation among AA individuals. If successful, the Web-based intervention could be disseminated across the >250 transplant centers in the United States to improve equity in living donor kidney transplantation. Keywords: education, intervention, kidney transplant |
| Databáze: | OpenAIRE |
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