A Dichotomy of Information-Seeking and Information-Trusting: Stem Cell Interventions and Children with Neurodevelopmental Disorders
| Autor: | Nina Di Pietro, K. J. Jacob, Judy Illes, Kimberly Sharpe |
|---|---|
| Rok vydání: | 2016 |
| Předmět: |
Adult
Male Cancer Research medicine.medical_specialty Health Knowledge Attitudes Practice Health Information Exchange Autism Spectrum Disorder Decision Making Information Seeking Behavior Information Dissemination Psychological intervention 0603 philosophy ethics and religion Health informatics 03 medical and health sciences Health Information Systems 0302 clinical medicine Information seeking behavior Surveys and Questionnaires Medicine Humans 030212 general & internal medicine Psychiatry Aged business.industry Information seeking Cerebral Palsy Health information exchange 06 humanities and the arts Cell Biology Middle Aged medicine.disease Autism spectrum disorder The Internet Female 060301 applied ethics business Stem Cell Transplantation |
| Zdroj: | Stem cell reviews and reports. 12(4) |
| ISSN: | 2629-3277 |
| Popis: | Parents and primary caregivers of children with Cerebral Palsy (CP) and Autism Spectrum Disorder (ASD) are faced with difficult treatment choices and management options for their children. The potential of stem cell technologies as an interventional strategy for CP and ASD has gained attention in the last decade. Information about these interventions varies in quality, resulting in a complex landscape for parent decision making for a child's care. Further complicating this landscape are clinics that advertise these interventions as a legitimate treatment for a fee. In this study, we surveyed individuals who considered taking their child with ASD or CP abroad for stem cell interventions on their use of different sources of stem cell related health information and their level of trust in these sources. Participants reported that while the Internet was their most frequent source of information, it was not well-trusted. Rather, information sources trusted most were researchers and the science journals in which they publish, other parents of children with CP and ASD, and healthcare providers. These findings highlight a dichotomy between information-seeking preferences and information-trusted sources. We discuss the challenges of health science communication and present innovative opportunities to increase communication with trusted and reliable sources as part of an integrated multi-pronged approach. |
| Databáze: | OpenAIRE |
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