Knowledge, attitudes, and barriers to carrier screening for the Ashkenazi Jewish panel: a Florida experience

Autor: Elizabeth Herman, Jessica R. L. Warsch, Sean Warsch, L. Zakarin, Deborah Wasserman, Jodi D. Hoffman, Adele Schneider, Deborah Barbouth
Rok vydání: 2014
Předmět:
Zdroj: Journal of Community Genetics. 5:223-231
ISSN: 1868-6001
1868-310X
DOI: 10.1007/s12687-013-0179-4
Popis: The knowledge, attitudes, and barriers to Jewish genetic diseases (JGDs) and screening and their relative importance in reproductive decision-making were assessed in a population-based sample of Ashkenazi Jewish young adults in Florida. These adults attended educational screening fairs hosted by The Victor Center for the Prevention of Jewish Genetic Diseases at the University of Miami. Parametric and nonparametric tests were used as appropriate to analyze data from a single group pretest/posttest design. Four hundred twelve individuals (mean age = 24.9; 54.7 % female, 45.3 % male) completed the questionnaires. Participants' level of knowledge increased from pre- to post-intervention (81.4 vs. 91.0 %; p
Databáze: OpenAIRE