Creating patient-centered radiology reports to empower patients undergoing prostate magnetic resonance imaging
Autor: | Joseph A Cafazzo, Masoom A. Haider, Vasiliki Bakas, Antonio Finelli, David Wiljer, Janet Papadakos, Mike Lovas, Shabbir M.H. Alibhai, Alexis Lund, Alejandro Berlin, Odelia Lee, Sangeet Ghai, Adam Badzynski, Nathan Perlis, Amelia Di Meo |
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Rok vydání: | 2020 |
Předmět: |
Contextualization
medicine.medical_specialty medicine.diagnostic_test business.industry Urology MEDLINE Human factors and ergonomics Magnetic resonance imaging medicine.disease Health informatics Prostate cancer Oncology Medical imaging Medicine Radiology business Original Research Patient education |
Zdroj: | Can Urol Assoc J |
ISSN: | 1920-1214 1911-6470 |
DOI: | 10.5489/cuaj.6585 |
Popis: | Introduction: As we progress to an era when patient autonomy and shared decision-making are highly valued, there is a need to also have effective patient-centered communication tools. Radiology reports are designed for clinicians and can be very technical and difficult for patients to understand. It is important for patients to understand their magnetic resonance imaging (MRI) report in order to make an informed treatment decision with their physician. Therefore, we aimed to create a patient-centered prostate MRI report in order to give our patients a better understanding of their clinical condition. Methods: A prototype patient-centered radiology report (PACERR) was created by identifying items to include based on opinions sought from a group of patients undergoing prostate MRI and medical experts. Data was collected in semi-structured interviews using a salient belief question. A prototype PACERR was created in collaboration with human factors engineering and design, medical imaging, biomedical informatics, and cancer patient education groups. Results: Fifteen patients and eight experts from urology, radiation oncology, radiology, and nursing participated in this study. Patients were particularly interested to have a report with laymen terms, concise language, contextualization of values, definitions of medical terms, and next course of action. Everyone believed the report should include the risk of MRI findings actually being cancer in the subsequent biopsy. Conclusions: A prostate MRI PACERR has been developed to communicate the most important findings relevant to decision-making in prostate cancer using patient-oriented design principles. The ability of this tool to improve patient knowledge and communication will be explored. |
Databáze: | OpenAIRE |
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