Gastroschisis at school age: what do parents report?
| Autor: | Titia E. Cohen-Overbeek, André B. Rietman, Dick Tibboel, Hanneke IJsselstijn, Rene M. H. Wijnen, Annelieke Hijkoop, Joost van Rosmalen |
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| Přispěvatelé: | Pediatric Surgery, Child and Adolescent Psychiatry / Psychology, Obstetrics & Gynecology, Epidemiology |
| Rok vydání: | 2019 |
| Předmět: |
Male
Parents Quality of life Pediatrics medicine.medical_specialty Adolescent Health Status Child Behavior Affect (psychology) Vulnerable Populations 03 medical and health sciences 0302 clinical medicine Child Development Cognition Interquartile range 030225 pediatrics medicine Health Status Indicators Humans 030212 general & internal medicine Prospective Studies Child Outcome Gastroschisis Behavior School age child business.industry Abdominal wall defect medicine.disease Prognosis Confidence interval Motor Skills Case-Control Studies Pediatrics Perinatology and Child Health Linear Models Female Original Article business Follow-Up Studies |
| Zdroj: | European Journal of Pediatrics European Journal of Pediatrics, 178(9), 1405-1412. Springer-Verlag |
| ISSN: | 1432-1076 0340-6199 |
| Popis: | Children with gastroschisis are at high risk of morbidity in early life, which could affect long-term outcomes. We determined parent-reported outcomes in school-aged children born in 2000–2012, using paper questionnaires. Parent-perceived child vulnerability and motor function were compared with the Dutch reference data; parent-rated data on cognition, health status, quality of life, and behavior were compared with those of controls matched for age, gender, and maternal education level. Of 77 eligible participants, 31 (40%) returned the questionnaires. Parent-reported motor function was normal in 23 (74%) children. Total scores on health status, quality of life, and behavior did not differ significantly from those of matched controls. Children with gastroschisis had lower scores on cognition (median (interquartile range); 109 (87–127)) than their matched controls (124 (113–140); p = 0.04). Neonatal intestinal failure and increased parent-perceived vulnerability were associated with lower scores on cognition (β − 25.66 (95% confidence interval − 49.41, − 1.91); − 2.76 (− 5.27, − 0.25), respectively). Conclusion: Parent-reported outcomes of school-aged children with gastroschisis were mainly reassuring. Clinicians and parents should be aware of the higher risk of cognitive problems, especially in those with neonatal intestinal failure or increased parent-perceived vulnerability. We recommend multidisciplinary follow-up at school age of children with gastroschisis and neonatal intestinal failure. What is Known: • Many infants with gastroschisis experience morbidity in early life.• Data on developmental outcomes and daily functioning in children with gastroschisis beyond the age of 5 years are scarce and conflicting. What is New: • Parents of school-aged children treated for gastroschisis report normal motor function, health status, quality of life, and behavior.• Children with gastroschisis, especially those with intestinal failure, may be at risk for cognitive problems at school age. Parents who reported their child as being more vulnerable also reported more cognitive problems at school age. Electronic supplementary material The online version of this article (10.1007/s00431-019-03417-5) contains supplementary material, which is available to authorized users. |
| Databáze: | OpenAIRE |
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