The experience of being a mother with end stage renal disease: A qualitative study of women receiving treatment at an ambulatory dialysis unit

Autor: Juan Francisco Velarde-García, Carmen Jiménez-Antona, Pilar Carrasco-Garrido, Paloma Moro-López-Menchero, Domingo Palacios-Ceña, Miriam Álvarez-Villarreal, Cristina García-Bravo
Rok vydání: 2021
Předmět:
Coping (psychology)
Activities of daily living
Epidemiology
Maternal Health
medicine.medical_treatment
Disease
Ambulatory Care Facilities
Families
Pregnancy
Adaptation
Psychological
Chronic Kidney Disease
Medicine and Health Sciences
Renal Transplantation
Children
Qualitative Research
Multidisciplinary
Obstetrics and Gynecology
Middle Aged
Qualitative Studies
Nephrology
Research Design
Medicine
Female
Anatomy
Research Article
Adult
medicine.medical_specialty
Science
Exploratory research
Mothers
Surgical and Invasive Medical Procedures
Research and Analysis Methods
Urinary System Procedures
End stage renal disease
Renal Dialysis
Medical Dialysis
Renal Diseases
medicine
Humans
Women
Dialysis
Aged
Transplantation
business.industry
Biology and Life Sciences
Kidneys
Renal System
Organ Transplantation
medicine.disease
Age Groups
Medical Risk Factors
Family medicine
People and Places
Kidney Failure
Chronic
Women's Health
Population Groupings
business
Qualitative research
Kidney disease
Zdroj: PLoS ONE
PLoS ONE, Vol 16, Iss 9, p e0257691 (2021)
ISSN: 1932-6203
DOI: 10.1371/journal.pone.0257691
Popis: BackgroundEnd-stage kidney disease (ESKD) has considerable effects on the quality of life, impairing daily activities and leading to lifestyle changes. The purpose of this study was therefore to explore the experience of motherhood and taking care of children in women with ESKD.MethodsA qualitative exploratory study was conducted based on an interpretive framework. Participants were recruited using non-probabilistic purposeful sampling. In total, 14 women with ESKD were included, who were treated at the dialysis unit of a Spanish hospital. In-depth interviews (unstructured and semi-structured interviews) and researchers’ field notes were used to collect the data. A systematic text condensation analysis was performed. The techniques performed and application procedures used to control trustworthiness were credibility, transferability, dependability, and confirmability.ResultsThree themes emerged from the data. “Coping with being a mother” described how women are faced with the decision to become mothers and assess the risks of pregnancy. The second theme, called “Children and the experience of illness”, highlighted the women’s struggle to prevent the disease from affecting their children emotionally or disrupting their lives. The third theme, “Fear of genetic transmission”, was based on the women’s fear of passing the disease on to their children.ConclusionsDeciding to become a mother and taking care of children represents a challenge for women with ESKD, coupled with the losses in their lives caused by the disease. These findings are only relevant to women on dialysis.
Databáze: OpenAIRE
Externí odkaz: