An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer
| Autor: | Josep M. Borràs, Melissa P. Upton, Ann M. Berger, Veena Shankaran, Skye Hung-Chun Cheng, Eino B. van Duyn, Cornelis J.H. van de Velde, Harvey J. Mamon, Annelotte C. M. van Bommel, Muhammad R. Abu Hassan, Samuel R.G. Finlayson, Pamela K. McAllister, Corinna Langelotz, Bruce D. Minsky, Mary K. Buss, Gilles Boland, A. C. Lynch, Eric Van Cutsem, Maartje Gisele Schouwenburg, Kim Ryan, Caleb Stowell, Donna Bauer, John Zalcberg, Robert R. Cima, John Lloyd, Joanne Ngeow, Rob A. E. M. Tollenaar, Jessica A. Zerillo, Jacob Lippa |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2017 |
| Předmět: |
Cancer Research
medicine.medical_specialty Palliative care Delphi Technique International Cooperation MEDLINE law.invention 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Randomized controlled trial law Health care medicine Global health Humans 030212 general & internal medicine Patient Reported Outcome Measures Quality of Health Care business.industry Patient-centered outcomes Focus Groups Focus group Oncology 030220 oncology & carcinogenesis Family medicine Quality of Life business Colorectal Neoplasms |
| Zdroj: | JAMA Oncology, 3(5), 686-694 |
| Popis: | Importance Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to patients. Objective The International Consortium for Health Outcomes Measurement (ICHOM), a nonprofit initiative, was formed to define standard sets of outcomes by medical condition. In this article, we report the efforts of ICHOM’s working group in colorectal cancer. Evidence Review The working group was composed of multidisciplinary oncology specialists in medicine, surgery, radiation therapy, palliative care, nursing, and pathology, along with patient representatives. Through a modified Delphi process during 8 months (July 8, 2015 to February 29, 2016), ICHOM led the working group to a consensus on a final recommended standard set. The process was supported by a systematic PubMed literature review (1042 randomized clinical trials and guidelines from June 3, 2005, to June 3, 2015), a patient focus group (11 patients with early and metastatic colorectal cancer convened during a teleconference in August 2015), and a patient validation survey (among 276 patients with and survivors of colorectal cancer between October 15, 2015, and November 4, 2015). Findings After consolidating findings of the literature review and focus group meeting, a list of 40 outcomes was presented to the WG and underwent voting. The final recommendation includes outcomes in the following categories: survival and disease control, disutility of care, degree of health, and quality of death. Selected case-mix factors were recommended to be collected at baseline to facilitate comparison of results across treatments and health care professionals. Conclusions A standardized set of patient-centered outcome measures to inform value-based health care in colorectal cancer was developed. Pilot efforts are under way to measure the standard set among members of the working group. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|