Self-Reports and Caregivers' Proxy Reports of Unmet Needs of Persons With Dementia: Implications for Both Partners' Health-Related Quality of Life
| Autor: | Janet MacNeil Vroomen, Terrence D. Jorgensen, Joan K. Monin |
|---|---|
| Přispěvatelé: | Geriatrics, ANS - Neurodegeneration, APH - Methodology, APH - Aging & Later Life, Preventive Youth Care (RICDE, FMG), Methods and Statistics (RICDE, FMG) |
| Rok vydání: | 2019 |
| Předmět: |
Gerontology
Male caregiving Unmet needs Article 03 medical and health sciences 0302 clinical medicine Quality of life (healthcare) Proxy report Health care medicine Dementia Humans Netherlands Health related quality of life 030214 geriatrics business.industry medicine.disease Pragmatic trial health-related quality of life Psychiatry and Mental health Cross-Sectional Studies Caregivers Needs assessment Quality of Life Female Independent Living Self Report Geriatrics and Gerontology business Psychology Needs Assessment |
| Zdroj: | Am J Geriatr Psychiatry American journal of geriatric psychiatry, 28(3), 363-367. Lippincott Williams and Wilkins The American Journal of Geriatric Psychiatry, 28(3), 363-367. Lippincott Williams & Wilkins |
| ISSN: | 1545-7214 1064-7481 |
| Popis: | OBJECTIVES: This study examined in a large sample of dementia caregiving dyads the associations between both partners’ reports of unmet needs in persons with dementia (PwDs) and both partners’ health-related quality of life (HRQOL). METHODS: This was a cross-sectional self-report survey of 521 community-dwelling dyads in a pragmatic trial in the Netherlands. The Camberwell Needs Assessment was used to measure PwDs’ unmet needs. Both partners’ self-reported their HRQOL using the EuroQol-5. RESULTS: Controlling for covariates, PwDs’ self-reported greater unmet needs were significantly associated with PwDs’ and caregivers’ lower self-reported HRQOL (actor effect; b = −0.044, β = −0.226, z =−3.588, p < .001 and partner effect; β =−0.021, p = −0.131, z=−2.154, p=0.031). Caregivers’ proxy reports were greater than PwDs’ self-reported unmet needs (Δ = 0. 66,χ(2) (1) = 55.881,p < .0001) . CONCLUSION: Clinicians should use caution in relying on caregiver proxy reports of PwDs’ needs and HQOL alone regarding healthcare decision making. |
| Databáze: | OpenAIRE |
| Externí odkaz: |
|