How Can We Not Waste Legacy Genomic Research Data?
| Autor: | Bartha Maria Knoppers, Susan E. Wallace, Emily Kirby |
|---|---|
| Jazyk: | angličtina |
| Rok vydání: | 2020 |
| Předmět: |
0301 basic medicine
secondary research lcsh:QH426-470 Legacy data Computer science Genomic research data sharing Filter (software) 03 medical and health sciences 0302 clinical medicine genomic research Genetics Genetics (clinical) Public fund Secondary research Data science Data sharing lcsh:Genetics 030104 developmental biology Alliance 030220 oncology & carcinogenesis Perspective Molecular Medicine consent Form of the Good policy |
| Zdroj: | Frontiers in Genetics Frontiers in Genetics, Vol 11 (2020) |
| ISSN: | 1664-8021 |
| Popis: | Enabling genomic and biomedical data to be shared for secondary research purposes is not always straightforward for existing “legacy” data sets. Researchers may not know whether their data meet ethical and regulatory requirements for sharing. As a result, these data, collected using public funds and the good will and efforts of the donors and investigators, may not be used beyond their original purpose. Single-use plastics are now being banned in many countries; single-use research should be avoided if possible. This paper describes a filter developed through the driver projects of the Global Alliance for Genomics and Health that can be used by researchers to help them determine the extent of sharing possible for their legacy data and actions to be taken to enable further sharing. |
| Databáze: | OpenAIRE |
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