Patient perspectives on the treatment burden of injectable medication for hereditary angioedema
| Autor: | Jessica M. Best, Rebecca Hahn, Marc A. Riedl, Jinky Rosselli, Timothy J. Craig, Aleena Banerji, Cristine Radojicic |
|---|---|
| Rok vydání: | 2021 |
| Předmět: |
Pulmonary and Respiratory Medicine
medicine.medical_specialty MEDLINE Survey result Injections 03 medical and health sciences Route of administration 0302 clinical medicine Quality of life (healthcare) Surveys and Questionnaires medicine Edema Humans Immunology and Allergy 030212 general & internal medicine Intensive care medicine business.industry Treatment burden Angioedemas Hereditary General Medicine medicine.disease Chronic disease 030228 respiratory system Hereditary angioedema Quality of Life business Prophylactic treatment |
| Zdroj: | Allergy and Asthma Proceedings. 42:S4-S10 |
| ISSN: | 1088-5412 |
| Popis: | Hereditary angioedema (HAE) is a rare, chronic disease characterized by debilitating swelling episodes in various parts of the body. Patients experience significant burdens related to the symptoms and management of HAE, which can affect their daily lives and reduce their overall quality of life. Prophylactic treatment options have expanded in the past decade to the benefit of patients; however, these therapies require scheduled injections, which can be painful, burdensome, and time consuming. We conducted an online survey of patients with HAE in the USA to better understand their experiences with available prophylactic medications and the associated treatment burdens. Our survey results suggest that most patients are satisfied with their current therapies but desire novel medications with a simpler route of administration and that, although most patients experience significant treatment-related burdens, they learn to cope with these challenges over time. |
| Databáze: | OpenAIRE |
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