Psychosocial consequences of a reduced ability to eat for patients with cancer and their informal caregivers: A qualitative study
| Autor: | Anouk van Limpt, Mecheline van der Linden, Nora Lize, Maggy Youssef-El Soud, Rianne van Lieshout, Sandra Beijer, Natasja J H Raijmakers |
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| Rok vydání: | 2020 |
| Předmět: |
Adult
Male Patients media_common.quotation_subject Psycho-oncology Shame Anger Feeding and Eating Disorders 03 medical and health sciences Eating 0302 clinical medicine Neoplasms Medicine Humans Qualitative Research media_common Aged 030504 nursing Oncology (nursing) business.industry Social environment General Medicine Middle Aged Caregivers 030220 oncology & carcinogenesis Anxiety Grief Female medicine.symptom 0305 other medical science business Psychosocial Qualitative research Clinical psychology |
| Zdroj: | European journal of oncology nursing : the official journal of European Oncology Nursing Society. 49 |
| ISSN: | 1532-2122 |
| Popis: | Purpose Patients with cancer often experience a reduced ability to eat. This can have psychosocial consequences for both patients and informal caregivers. Current literature is mainly focused on patients with end stage advanced disease and cancer cachexia. This qualitative study provides new insights in the field of Psycho-Oncology by exploring psychosocial consequences of a reduced ability to eat in patients in different stages of the disease and in recovery and remission. Method Semi-structured interviews (n = 26) were conducted in patients with head and neck, lung cancer or lymphoma. Patients’ informal caregivers participated in 12 interviews. All interviews were recorded, transcribed and thematically analysed using Atlas.ti. Results Four themes emerged related to psychosocial consequences of a reduced ability to eat: struggle with eating, high sense of responsibility, misunderstanding by social environment and social consequences. Emotions mentioned by patients and informal caregivers were: anger, anxiety, disappointment, grief and sadness, guilt, powerlessness and shame. The theme social consequences was related to: less pleasure experienced and the social strategies: adjust, search for alternatives and avoid. Conclusion Patients with cancer and their informal caregivers experience a wide range of psychosocial consequences of reduced ability to eat during all phases of the disease trajectory and in recovery and remission. It is important to recognise and acknowledge this struggle to optimise future care. |
| Databáze: | OpenAIRE |
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