Keeping Disability in Mind: A Case Study in Implantable Brain-Computer Interface Research
| Autor: | Matthew Sample, Michelle Pham, Raney Folland, Timothy Scott Brown, Sara Goering, Paul Tubig, Laura Specker Sullivan, Eran Klein, Anjali R. Truitt |
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| Rok vydání: | 2017 |
| Předmět: |
Male
030506 rehabilitation Technology Health (social science) Area studies Computer science media_common.quotation_subject 03 medical and health sciences 0302 clinical medicine Engineering Human–computer interaction Management of Technology and Innovation Humans Disabled Persons Function (engineering) Qualitative Research User-centered design media_common Research ethics End user Health Policy Research Focus Groups Focus group Research Personnel Issues ethics and legal aspects Attitude Brain-Computer Interfaces Female Thematic analysis 0305 other medical science 030217 neurology & neurosurgery Qualitative research |
| Zdroj: | Science and engineering ethics. 24(2) |
| ISSN: | 1471-5546 |
| Popis: | Brain–Computer Interface (BCI) research is an interdisciplinary area of study within Neural Engineering. Recent interest in end-user perspectives has led to an intersection with user-centered design (UCD). The goal of user-centered design is to reduce the translational gap between researchers and potential end users. However, while qualitative studies have been conducted with end users of BCI technology, little is known about individual BCI researchers’ experience with and attitudes towards UCD. Given the scientific, financial, and ethical imperatives of UCD, we sought to gain a better understanding of practical and principled considerations for researchers who engage with end users. We conducted a qualitative interview case study with neural engineering researchers at a center dedicated to the creation of BCIs. Our analysis generated five themes common across interviews. The thematic analysis shows that participants identify multiple beneficiaries of their work, including other researchers, clinicians working with devices, device end users, and families and caregivers of device users. Participants value experience with device end users, and personal experience is the most meaningful type of interaction. They welcome (or even encourage) end-user input, but are skeptical of limited focus groups and case studies. They also recognize a tension between creating sophisticated devices and developing technology that will meet user needs. Finally, interviewees espouse functional, assistive goals for their technology, but describe uncertainty in what degree of function is “good enough” for individual end users. Based on these results, we offer preliminary recommendations for conducting future UCD studies in BCI and neural engineering. |
| Databáze: | OpenAIRE |
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