Needs and preferences of patients regarding basal cell carcinoma and cutaneous squamous cell carcinoma care: a qualitative focus group study
| Autor: | M. Lugtenberg, M.T. Bastiaens, M. Droger, S. van Egmond, Tamar Nijsten, K.P. de Roos, Marlies Wakkee, A. van Rengen |
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| Přispěvatelé: | Dermatology, Public Health |
| Rok vydání: | 2019 |
| Předmět: |
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medicine.medical_specialty Skin Neoplasms Decision Making MEDLINE Aftercare Dermatology 030207 dermatology & venereal diseases 03 medical and health sciences 0302 clinical medicine Patient-Centered Care medicine Carcinoma Humans Basal cell carcinoma Patient participation Qualitative Research Aged Netherlands Aged 80 and over Health Services Needs and Demand Physician-Patient Relations Evidence-Based Medicine business.industry Cancer Patient Preference Focus Groups Middle Aged medicine.disease Focus group Carcinoma Basal Cell Family medicine Practice Guidelines as Topic Carcinoma Squamous Cell Female Patient Participation Skin cancer business Qualitative research |
| Zdroj: | British Journal of Dermatology, 180(1), 122-129. Wiley-Blackwell Publishing Ltd |
| ISSN: | 1365-2133 0007-0963 |
| Popis: | Background: Despite the high and rising incidence rate of keratinocyte cancer (KC) and the importance of incorporating patient values into evidence-based care, few studies have focused on the perspectives of patients with KC. Objectives: To identify the needs and preferences of patients with basal cell carcinoma (BCC) and squamous cell carcinoma (SCC) regarding care. Methods: A qualitative study was conducted consisting of three focus groups with patients with BCC and three focus groups with patients with SCC. In total 42 patients participated. In each focus group, the patients’ needs and preferences regarding treatment and follow-up were discussed, using a predefined topic list. All sessions were transcribed verbatim and analysed by two researchers. Results: The following needs and preferences were identified: (i) the need to receive all relevant, tailored information; (ii) a physician who takes you seriously and communicates well; (iii) a short waiting period and the best treatment with direct results; (iv) to be seen by the same physician; a preference for a dermatologist during (v) treatment and (vi) follow-up; (vii) a general need for structured follow-up care and (viii) a full-body skin examination during follow-up. Patients with BCC additionally expressed the need for openness and transparency and wanting to participate in shared decision making. Conclusions: It is advocated to organize skin cancer care that is better tailored to the needs of patients with KC, providing patient-centred care. This should include investing in the patient–physician relationship, and personalizing the type and form of information and the follow-up schedules. Adding the patient's perspective to current guidelines could facilitate this process. |
| Databáze: | OpenAIRE |
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